Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Severe pain, please need help so bad.

Jazzy15aJJazzy15a Posts: 7
edited 07/14/2015 - 11:34 PM in Chronic Pain
My husband is 100% disabled, he lives in world of excruciating pain, he is only 48, he lives in bed in never ending pain. He has had 3 botches back surgeries last one was a failed fusion. He has been to so many doctors neurologist, orthopedic, visits to xxxx meducal centers, he has done physical therapy, cognitive therapy, hypnosis, nsaids inclyding meloxicam and toradol way too much tylenol, muscle relaxers, he has had every injection imaginable, i can't even come clise to listing all the treatments andbtherapie. and therapies he has had. He has also been told the damage can't be fixed, it will only get worse, there is nothing that can be done. Due today the extreme amount of scar tissue, degenerative issues also, surgery would be to risky. He had a doctor for awhile that had him on extended release morphine and oxycodone for break thru, this combination at least gave him a quality of life. Now thats gone, we relocated due to cost of living since my husband was retired due to his disability, even with his records, and its quite a file hoing back to 1993,he can't get help. He has been to so many doctors in our area looking for any kind of help, no one will help they want to do more injections some which have made him sick or pain worse, meditation, cognitive therapy. Or make him feel like a piece of trash. My husband needs help i am afraid he will just give up and stop looking for help, stay in pain and in bed forever, we live in southwest missouri, what is my husband suppose to do, my husband deserves quality of life, how can i help him find the help he so desperately needs?

No one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.



  • SavageSavage United StatesPosts: 5,476
    Welcome to Spine-Health
    Please click on link for helpful information!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • sandi123ssandi123 Posts: 456
    edited 07/15/2015 - 3:42 AM
    Him living with chronic pain and you feeling helpless to help him.
    When it comes to complex spine issues, you need to head to major medical centers, with doctors and specialists who generally are at the top of their fields.
    I am in a similar situation, severe, complex spine issues, failed surgeries, and of course chronic pain, permanent damage to the lower half of my body.
    I started searching at major medical centers, then spine surgeons who specialize in complex spine revision, spinal cord injury, and the other issues in my spine that are involved. I started emailing and made appointments with them. I also checked on various websites about their backgrounds.
    There are doctors out there who do deal with these kind of problems but you have to look for them at large teaching/major medical facilities.
    One thing he and you both really need to do is get him out of bed, and walking every day though.
    As hard and painful as it is in the beginning, laying in bed is going to contribute to worsening his pain levels , completely weaken his muscles, perhaps cause atrophy from disuse, weaken his core muscles, lead to depression or worsen it.
    Starting slow, and walking several times a day, sitting up in a chair, and very slowly increasing distance, and time will help him far more than you can realize, and help strengthen those muscles supporting his spine, increase his endurance and stamina. If you find a Surgeon who can help him, you want him to be strong enough to reap the benefits of the surgery and be mentally and physically as ready as he can be.

  • I'm so very sorry your husband is hurt and that you are carrying such a large burden to keep him comfortable and hopeful. I too, have gone through several spine fusion surgeries (my problems were not the typical blown disk type), the first of which was a complete failure. After spending hours upon hours on the internet, I found a couple orthopedic doctors who had 5 star ratings. I asked my pain doctor to recommend one and it turned out to be the best thing that could have happened. There are places out there that claim to be able to "completely fix" spinal issues but I suspect they only do it for people who have basic cases of disk bulges. etc.

    When I was at my worst physically and mentally, I felt like a prisoner in my own home. One of the best things I did was get in the car (with a family member driving) and spent time driving by some urban lakes, stores, parks and any other place that made me feel "normal" just by being near the locations. The meds made me so sleepy that i couldn't seem to even find a hobby I could do in bed and keep myself happy. God bless Netflix and laptops.

    Surgery is a huge decision as you already know. I'm not sure how or when it will happen but I have a strong feeling that at some point if you keep looking and asking questions, you WILL find the right path to follow. Your pain and suffering is not the same as his however you are going through your own personal hell that no surgeon can fix. Be aware of your feelings and thoughts and get help immediately if you totally lose hope. Keep repeating to yourself that "this will all turn out okay one way or another. WE WILL SMILE AGAIN!" Please oh please don't lose hope, I'll keep you both in my prayers.
    Remember you're not alone. Keep your hope strong!

  • Jazzy15aJJazzy15a Posts: 7
    edited 07/16/2015 - 8:27 PM
    My husband has been to several Medical centers including xxxx in Portland, xx and University of xxxx just to nane a couple, he has seen numerous spine specialist, they all have said surgery is not an option, this is it abdvat some point will be in wheelchair, he has had several mylegrams, mris, ct scans, xray, he even has an several emgs, one of the doctors conducting the emg actually wrote in husbands file that my husband was hostile and violent because of the pain caused by the test my husband said a obscene word in midst of the severe pain. We explained what had happened to PCP, he was able to get it removed from file. Another doctor at another medical center had husbabd on exam table and was forceabley pushing fhusband knees back up to his chest my husband beg and pleaded for him to stop, doctor stopped, said nothing except we are done and walked out of room, my husband was left to struggle to get off of exam table, it was heartbreaking, my husband is 6 ft 3 and 180lbs, it was a struggle for me to help him off table. My husband does his best to get out of bed as much as he can, his right leg is completely paralyzed no feeling, foot drop so he wears a special brace, its so easy for husband to slip due to lack of feeling in that right foot. He has tried every conservative treatment, any sort of physical therapy that has been suggested, he has tried psychological therapy. The last pain clinic he went to the doctor wanted to start the usual course of injections, even though his records show they do not work, make sick or worsen pain but my husband has always done what is asked in forns of treatments in hopes of getting help. My husband went for shots as requested when he informed doctor shots were not working, the pain is worse the doctor told him, there is nothing else I can do for you. My husband deserves a quality of life. He had an excellent career that he had to be medicalkt retired from due to being declared 100% disability at 38, several doctors have said how are you even walking, husband said I won't give up that was many years ago before being beaten down by medical establishments. Maybe in some way my husband is a drug seeker, he is seeking them for pain relief. What is he suppose to do, my husband deserves a quality of life.
  • Hi Jazzy. I'm so terribly sorry that the 2 of you are suffering like this. I know how incredibly hard it must be for you watching the man you love go through this. I'd be frustrated, angry, depressed...there just aren't adequate words!
    Sometimes it feels like I've seen nearly every surgeon in the world! I go through stages of dragging myself around every new, possibly hopeful, specialist I can find & then I get completely exhausted & frustrated with that & my doc just 'maintains' me until we come-up with a new plan of action. I've tried regular medical & the more alternative stuff. Desperate is desperate & sometimes I've been surprised by the little bit of relief I do get from the more 'out there' therapists. Just make sure they're not going to pull him around! I've done more harm than good with that sort of thing.

    Now, to the main issue as I see it... I do everything I can to manage my pain. I've tried to live without narcotic medications in the past & I simply can't function at an acceptable level. I've got kids & no support system in this country. I can't let my kids run wild because I can't move. I'm in the strange position that I actually experienced a 'reverse intervention' of sorts. I arrived for a regular appointment to be greated by a couple of specialists who lectured me on the physical & mental damage caused by living with unmanaged chronic pain. They terrified me. My life is so much better now. I too take Morphine ER & Oxycodone for breakthrough pain. I'm still in pain, nothing is going to take that completely away but I can live my life (with lots of restrictions) I live! I was loosing my mind before!! When tolerance inevitably hits I change meds rather than increasing doses further. I don't go above 30mg ER pills. This works for me. My Dad has been a chronic pain sufferer for about 40 years medicated. He plays seniors competitive golf with a spine that looks like a scenic railway. Well into his 70's his docs believe that it's more important for him to truly live & get the exercise than take his narcotic meds away!

    I've had to find new specialists when I've moved. I've 'interviewed' & met many pain management docs over the years & discussed this subject. In my experience there are PM docs who will not prescribe narcotics at all. If I or any other member here went to them we would be taken off of our narcotic meds. In my area Interventional PMs generally fall into this category. Many of the clinics in my area are owned by a couple of the big medical companies. They have rules regarding what levels of narcotics the docs can prescribe.
    Independently owned PM offices are often different (NOT always). There are PM's that fully support narcotic therapy. For me it's a life saver in so many ways. Many docs don't want a new patient that just requires narcotic maintenance. It's the current enviroment in this country!!
    Do you have a good relationship with your GP? In my experience they know which docs prescribe & which ones don't. I'm glad your husband has you to come to appointments with him & advocate for him. Getting to appointments, waiting, sitting & being pulled around drives my pain levels up uncontrollably. This can make a patient appear as combative for want of a better word. Having you state his case with him is a good idea.
    Only once my pain is controlled can I focus fully on the other modalities to manage my pain. I'm far more mobile, active & involved in my life. Without my meds my pain rockets above a certain level & everything (including my depression) gets a lot, lot worse. It's a cascade. I even stop following my strict Antiinflammatory diet, can't stretch & exercise, find it hard to get in & out of the bath, loose focus on everything so I stop my hobbies (distraction is the best pain management tool). Take away that one piece of my Blend & I start to loose ALL of it. I feel so desperately sorry for your husband. I do know other people in a very similar boat but all of them have narcotic meds. As you know they're not a miracle that takes the pain away but once you've exhausted all the other stuff what else is left?

    What other meds is he taking at the moment? Nerve, muscle relaxants, depression meds like Cymbalta? I have a prescription compounded cream that contains Ketamine & Lidocaine, nerve & muscle meds etc. my doc had to change doses & tweak the meds & I had to consistently use it before it became effective. It does help.
    Having a whole list of things that you want to discuss might improve a new docs perception.

    I know I've rambled on a lot here. I just wanted you & your husband to know that you're not alone. I understand, I really do. It must be so incredibly frustrating (huge understatement!) to know that there's something available that improves your lives but you're not getting it! All I can suggest is finding a PM that you know prescribes those kinds of meds & plead your case. I'm well aware that docs don't like being asked for narcotics & he will probably have to start on different meds than he was taking before. He may have to repeat some treatments. As I said, in the current enviroment docs don't like just narcotic maintenance. I know!!

    How many PM's has he consulted? What's their reasoning for withholding meds?
    Osteoarthritis & DDD.
  • Jazzy15aJJazzy15a Posts: 7
    edited 07/16/2015 - 12:57 PM
    The doctors here in southwest Missouri just do not want to do pain meds, it's all about injections. I have list count if the number of pain clinics or pain specialist we have been too. They all want to do injections, the last pain script my husband received was 8 months ago it was 20, 5 mg hydrocodone, thats all. Right now it's a combo of ibuprofen and Tylenol. In 2011-2012 he had best pain control he has ever had extended release morphine and oxycodone for break thru, it allowed him to help me care for my dying father, walk our oldest daughter down the aisle and welcome our first grandchild. He had a quality of life, we know nothing will take pain away, he just wants to get some sort if relief. We have gone to doctors up in kansas city, its always why are you not seeing a doctor in your area. All the pain management around here believe there are ways to treat chronic pain without narcotics, one pain clinic even had him try sime sort of eye movement thing, he will do whatever they ask in hopes to get some relief. It aggravating because we have files from so many doctors that all same thing, surgery is not an option, it won't get better only worse, its like doesn't matter. It's like they are not even listening, looking at his records and if you do speak up thats not good either. Just don't know what to do. My husband needs help but where do we go, what do we do?
  • sandi123ssandi123 Posts: 456
    edited 07/17/2015 - 3:51 AM
    The problem is that you may want to start looking at various medical doctor rating sites, or the practice websites themselves. See what treatment options they list- there are two different types of pain management doctors- Interventionalists- injections, procedures, spinal cord stimulators, rfa's, nerve blocks etc.....then there are conventional or comprehensive pain management doctors, those usually offer medical management, along with the other therapies and modalities that an Interventionalists does. You can also check for PHYSIATRISTS, who specialize in physical medicine and rehab. Both the comprehensive and physical medicine and rehab doctors typically offer all types of pain management.
    What you both may need to take into account when you see any new doctor, is they may still want him to at least try a few injections or other therapies and meds so they can see for themselves what the outcome is.
    With extensive medical records, it becomes a bit more complex, unless they have the records ahead of time, to go through the entire record, so condensing the tests, previous treatments, imaging and reports from consultations becomes important, to save you and the new doctor time during the appointment. You also may have to wait a few appointments before a new doctor might be willing to start opiate therapy. A new doctor may want to start him off at the very beginning, with muscle relaxers, anti inflammatory meds, and lower dose opiates or nerve pain meds ,and see how it goes.
    I recently had to find a new pm after the one that I had for 10 years closed their local office and moved to the city office. I had my records faxed to the new consults ahead of time, and gave them time to review them before my appointment, so when I did see the doctor, we didn't have to waste the first visit going over everything all over again.
    We all understand how difficult this is, for both of you, and it may take some work to find a new doctor, but they are out there. I would make sure that when you do consult with doctors though, that it doesn't come across that he is only seeking opiates, but rather some relief from the pain. It is a fine line, and refusing other modalities or stating that X,Y, Z treatments don't work, or medications other than opiates don't work can be construed as drug seeking and often leads to doctors who won't consider opiates at all.

  • I'm so desperately sorry. I can feel your pain & frustration in your words. Sandi really knows what she's talking about. I hope that something there is an option that you haven't tried.
    My GP has helped me find a PM in the past. Because they'd discussed my case it ran so smoothly. He knew all about me, we talked for a while about options moving forward & he gave me my prescriptions, just increasing my ER narcotic to 3x a day, keeping everything else the same the first appointment. It can be easier with a medical professional 'on your side' (for want of a better phrase). Does your GP or past surgeon support you & say they understand your situation & feel your frustration? GPs see a lot of patients & know which specialists they see & what meds they take. My GP knew that PM supported narcotic therapy because he saw a lot of patients who were prescribed by him.
    Surgeons often work closely with PM docs & refer patients to continue narcotic therapy after surgery.
    I went to a large reveared spine clinic attached to a hospital. They are huge in Texas. They have great surgeons on staff. The sort who are published a lot & do research. My case was reviewed by the board. The surgeon I was given discussed my case & presented options to me. Although they wouldn't operate at the time they did send me to one of their PM docs on staff to prescribe for me so I was seeing both surgeon & PM there. I don't know if I got that care because I was also studied for my 'weird' pain reactions. Is there a famous place like that within driving distance for you?
    I had a consultation with a specialist working with experimental stem cell, plasma rich procedures. I'm not saying that there's necessarily anything that someone like that could do to really help (I'm not sure how I feel about it. I didn't go ahead with treatments. We're all different. Some strongly believe in it) but I know he also offered narcotic maintenance. My insurance covered my consultation & Pre-approved testing for me.

    I know you say you've tried everything so at this point I'm just throwing out my experiences to see if they make you think of something, anything that might help.
    Osteoarthritis & DDD.
  • I appreciate all the support, he is willing to endure anything, he is willing to endure anything to get help and has but if the injections do not work the doctors don't like it, I spend all my free time on computer looking at doctors, their ratings, pain clinic and management website without fail they all say our goal is to eliminate the use of pain medication in treating your pain. The idea and thought is great but it is not a reality for everyone in. Or I am making
    phone calls to doctors and or clinics. Sometimes I wonder if they want to push their injection protocols to keep you coming back, too make money maybe I
    am just bitter.
    Last nite the pain got so bad my husband was vomiting, crawling to the bathroom, that was
    it I said we are going to the ER even a muscle relaxer, anything. We were back at home within an hour with absolutely nothing, and my husband self esteem
    even more damaged. The nurse got him triage, she
    was so sweet, then came the doctor who saw the big
    scar on his back, said this is you have hurt your back
    before, you have had back surgery that means its
    chronic we don't treat for that, nothing for vomiting,
    nothing at all, he was discharged, tge nurse was surprised there were no scripts with his discharge, she went back to double check, she was so apologetic, it wasn't just what
    he said it was the way he said it, such a nasty,
    attitude. Husband was so angry in the car, he was crying in pain, he said why bother the doctors do not
    Did get some news today a spine specialist /clinic called with an opening for Monday morning its a 250 mile drive, someone cancelled, originally appointment was three weeks away. My husband is not even sure its worth the effort, he has just lost all faith in medicine. Please pray he gets help.
    Aside from this appointment I don't know where else to go. If you have pain don't live in Southwest Missouri.

  • When was the last time you spoke to your GP? Is his compassionate? I know I keep saying this but mine has been so much help over the years. Maybe if even you made an appointment for depression/anxiety. Just venting to a medical proffesional could help both of you. This is a horrific situation. I wish I could help you I truly do. I know in Texas if you are 'Geographically isolated' (meaning your husband can't drive any further than the GPs) they can prescribe for you. At this point finding a doc with a heart to help your husband seems like a shot. Your GP might help, might be able to talk to a PM in your area, might have some advise that could help. Explain how this is effecting BOTH of you. A GP can at least prescribe muscle relaxants, nerve meds, maybe Cymbalta that's a depression med that's given for chronic pain, surely he will?!? I have to believe that there's a doc in Missouri with a heart. I know what pains like without the relief of meds. You're now living my worst nightmare. It's terrifying! How can this be happening?

    Is it an area with a big history of prescription abuse?

    Have you looked into Sandis advise & looked for PHYSIATRISTS. I know some members here use them as their PM coordinating their care & prescribing their meds.
    Do you have a copy of your medical records? Are you sure there's nothing in there that's making docs hesitant to prescribe? Ugh! I know I found it hard to believe the problems that members in Florida were having with pharmacists until I started to experience my own issues in Texas! We're living in a terrible enviroment caused by the history of prescription medication abuse in this country. It's so wrong that genuine chronic pain patients are being dismissed & left to suffer like this. I'm so terribly sorry. This is heart breaking. It truly is.

    Unmanaged chronic pain is disasterous for our health. The anxiety must be making everything so much worse for your husband. I'm just glad that he has you in his corner. You're a blessing for him. Support is invaluable for us. Please don't give-up. There must be a solution. Again, I'm desperately sorry for you both. My heart is with you.
    Osteoarthritis & DDD.
  • NursesrangelsNNursesrangels Posts: 29
    edited 07/17/2015 - 2:07 PM
    My heart goes out to you and your husband. I understand the pain as the patient, and the struggles of being the caretaker. You are suffering along with him, you may not have the pain, but you are in pain. Sandi and English Girl have had great suggestions for both of you, I agree that starting with your primary care physician is the best place. A PCP knows you the best, and many times is the one that must coordinate all care, knows the specialists in the area, and has most of your medical records. A relationship with a doctor is best started with some type of referral, if that comes from another physician there is a level of trust already built in.
    Do you have a primary doctor or a generalist that your husband has seen in the past year? Is the surgeon that did his surgery (although you mentioned it was a failed surgery) able to be contacted? It is the doctors that have been in care of us that are the best suited to make suggestions or referrals, for they know our case.
    Anyway my heart was touched by your story and I just wanted to let you know that I heard you, I feel for him in his pain experience and I feel for you as the caretaker/person that loves him. I have been in both positions, they both take a lot of energy and dedication to finding answers.
    Good luck on Monday if you do go to the appointment I believe there is a reason why someone cancelled during this hard time for you both---this could be the place and doctor that you have been looking for! It is a long trip, take some extra time in getting there so you are not feeling rushed, bring waters and snacks for your drive. I will keep you both in my prayers. Please let us know how it went if you can.
  • We have talked to husband Gp soany times, he is very sympathetic but of course isn't comfortable prescribing. He has told us look up the highway towards Springfield or Kansas City, we were not going to find anything, there was a pain!/rehab center ran by a state University Hospital but they shut down in October 2014. And it also seems like a lot changed in our medical community after the Joplin tornado May 2011. My husband is on antidepressants zoloft, we know severe pain and depression go hand in hand. Honestly i don't know if their is a high abuse problem in our area or not. I go through same drill every day get on phone or computer looking for help.
  • SavageSavage United StatesPosts: 5,476
    edited 07/18/2015 - 11:24 PM
    I do not know if this would benefit you, but at the top of the page there is a __find a doctor__
    Maybe a doctor nearer to your home. I don't know?

    Sometimes pain management doctors are located near home or associated with smaller hospitals and don't advertise same as larger clinics may.

    Initially, I was being seen by a bigger name clinic, fortunately nearer to my home. After few years, they said there were t enough patients, so they moved back into the city.
    There was no way I could make that drive monthly, so I needed to look into PM doctor closer to home.

    One of the doctors, who previously worked for the bigger name clinic, he quit while I was still being seen by clinic.
    When needed new doctor, I found him and he was very close to my home.
    About 40 miles from home is my Primary doctor, and I told her if hospitalized for any of my other issues, I so concerned about my pain relief.

    She assured me that hospital she was associated with would also have pain management to keep me comfortable.
    I never knew that before..as I never saw them with my independent search for new PM doctor.

    I understand it may be more difficult, depending on where you live.
    I wish you the very best!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Did your husband go to his appointment today? Please let us know what happens. My thoughts are with you.

    Check your inbox I've sent you a message ;-)
    Osteoarthritis & DDD.
  • I am writing this through tears, we drove 250 miles to a spine center im Kansas City, the doctor listened. My husband is begiypain management and doctor said will reevaluate next month. I wanted to hug the doctors, at furst he suggested the injection route, that was it, I opened my husband mountainous file, i had every thing he ever had done tabbed, he requested myelogram from Ku Medical Center. My husband fusion is completely incased in scar tissue and has shifted. The doctor said yes it was not fixable too much damage. When my husband got in the car we held each other and cried, its only the beginning of treatment but just someone listening and caring, its a start that we will take, it meant the world. If we have to drive 250 miles monthly then so be it, i love my husband i would go to the moon to help him. Thanks for all support will keep everyone posted.
  • I am so glad that your hubby's new doctor listened and gave you both hope!! I can only imagine how freeing it feels. Glad you made the trip!
  • SavageSavage United StatesPosts: 5,476
    So very happy for you and your husband!
    Great news!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • That's awesome news. Sometimes it might take awhile but there are good doctors out there, who really do want to help. I am glad you guys found one.

  • EnglishGirlEEnglishGirl Posts: 1,825
    edited 07/21/2015 - 5:59 AM
    What a relief! I've driven home in tears from appointments. It's wonderful when it's for all the RIGHT reasons!!! Here's to a better future! ;-)
    Osteoarthritis & DDD.
  • Jazzy15aJJazzy15a Posts: 7
    edited 07/23/2015 - 9:12 PM
    My husband last back surgery his fusion was done in 2002, unfortunately can't see that sutgeon as he died several years ago. Lasy neurosurgeon we saw at [edit] Medical Center said surgery not an option due to risk of paralysis or worse, scarey. The pm doctor we saw Monday called earlier today informed us that he had looked at notes in husband file since injections are not an option, there is nothing else he can do, since injections are not an option no medication bacl to square one. Injections do not help everyone, that seems to be the fit all solution, we use injections so you won't need opoid therapy. I wish some of these drs could live with severe chronic pain, they wouldn't make it a day.
  • I know this doesn't help you right now but I have noticed a change in the way prescription narcotics are discussed in the press & by politicians. It was always "The Evils of Prescription Drugs" & Oxy is 'Hillbilly Heroin' etc. Recently I've noticed small mentions of genuine chronic pain patients being under medicated. We're repeatedly referred to as "Collateral damage in the war on prescription drugs." Even 3 of the 5 who wrote the papers reclassifying Hydrocodone voiced their concerns. I get the feeling that the tide is starting to turn.
    Moving from England to America I was shocked by the liberal prescribing of narcotics that had become common. I think the reaction was too extreme, confusing medicine with legal issues is never good in my opinion. Finally there was an aspect of the 'War on Drugs' that wasn't an epic failure. Results were good & fast. Things just went too far. Now I hope the pendulum is starting to swing back. More & more studies are being released showing the devastating consequences of living with unmanaged pain long term.
    I know this is little consolation when you watch your love suffering day after day. I believe that things have got as bad as they're going to. I pray that life is going to get a little easier for people like you. I know how incredibly fortunate I am to have my compassionate, supportive doctors. As I've said, I know what it's like trying to function without the prescription part of my 'Blend'. I was determined I could do it but that proved impossible & very damaging to my physical & mental health. I'm desperately sorry for both you & your husband. He's living my worst nightmare! I know there are great doctors out there. I hope that you find yours soon.
    Osteoarthritis & DDD.
  • I am not able to have corti-steroid injections because I have an allergy to them. I have had quite a time with pain myself and with not being able to have those injections, it has limited my options greatly. It is such a shame that they aren't able to do any more to help him. I will be seeing a physiologist in a couple weeks and I don't think they will be doing much to help me either. I don't know much about other choices but I guess the main reason I am responding is that I understand the predicament that you and your husband is in.
    Tracie C
Sign In or Register to comment.