I have just joined and would be grateful for some advice...
I have a central prolapsed disc t10 / t11 and saw a first surgeon who barely spoke to me and put me immediately onto the waiting list for a trans / thoracotomy. I am lucky as work with doctors (am a mental health nurse) and one of my colleagues contacted a friend who is a more expert surgeon in this field.
I saw the 2nd surgeon a couple of days ago and he spent ages with me. I have the prolapse and symptoms but no signs which I take as great. He says I also have slipping bones, my spine is not aligned normally being forward slightly.
He said he would not operate until I am showing mylopathy due to the risks of surgery. That I accept (under normal circumstances) however I am 36 next year and want another baby. I have a 3 year old daughter. He has advised against it but cannot say for sure due to the rarity of this type of disc. He cannot really tell me anything. He is the only surgeon that does the thoracic surgery and says he only sees 2 thoracic prolapse per year.
I do get pain but I can manage it and live with it. The surgery would not be because of pain but because of the risk of paralysis. If the disc moves any further I am at a great risk of this. I only use accupuncture for pain.
It was thought that I had inflammatory arthritis however I have no idea if this is still the case now, I also have a lumber prolapse but they are not concerned with this unless I struggle with the pain.
Sorry for the long ramble. I am terrified and it is all so new. And devastated to be told not to have another baby. I look forward to any words of wisdom any of you can share.
Thank you ********************************************************************************************************* Welcome to Spine-Health
One of the most important things that need members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.
So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.
Here are some questions that you should answer:
- When did this first start?
. Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
. Which doctor did you start with? Ie Primary Care Physician
. Who are you currently seeing?
- What Conservative treatments have you had? Which ones?
. Physical Therapy
. Ultrasound / Tens unit
. Spinal Injections
. Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
. Summarize the results, please do not post all details, we cannot analyze them
. How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)
. Name of Medication
. How long have you been using this?
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?
Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.
Please take a look at our forum rules: Forum Rules
I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ
There you will find much information that will
- Help you better utilize the Spine-Health system
- Provide pointers on how to make your threads / posts
- Tips on how to create your avatar (your picture), posting images, etc
- General pieces of valuable information
Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide
- Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
- Medical advice of any kind
- Recommendations in terms of Medications, Treatments, Exercises, etc
What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.
It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have areI’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?
Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.Specific comments :Personal Opinion, not medical advice :
--- Ron DiLauro, Spine-Health System Moderator : 07/17/15 21:17est