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getting used to spinal cord stimulation

lucysadiellucysadie Posts: 1
edited 07/17/2015 - 3:09 PM in Spinal Cord Stimulation
My mom had her trial spinal simulator placed yesterday. I won't detail her long history of pain and treatment as I'm sure most of you have been through it yourselves. Can anyone share their experiences getting used to the simulator? Did others experience annoying vibrations in your arms. If so, is it something that you were able to get used to? She's also having frequent urination and diarrhea, is this normal? I assume her bladder and intestines are also stimulated which is causing this. Does it decrease? She thinks the simulator is helping because it's for her upper back, and today she is noticing her lower back pain more. One more thing, she's not used to being able to be up all day, and she's been adjusting the stimulater all day long. At this point, she's in really bad pain and exhausted. Is it better to play with the stimulation level or leave it alone. We are both so hopeful that this will work. I've never reached out on a forum like this before, but I didn't know who else to ask. If you've read this, thank you.

Welcome to Spine-Health

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Specific comments :

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--- Ron DiLauro, Spine-Health System Moderator : 07/17/15 21:13 est


  • SavageSavage United StatesPosts: 5,476
    edited 07/17/2015 - 4:06 PM
    I do not have personal experience with your questions.

    But wanted to mention that on this site is a __ search__upper right on page. It may benefit you.
    Type in your concerns and you may be led to older posts on the topic, or articles, and or videos.

    Often, when I use the search, I have more questions. Sometimes I continue search or will write questions down for doctor.
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • I am new to this, I have had my perm one for about 3 months, I know with my temp one in, I had an increase in the stimulation in my chest, I cant remember it being in my arms, and the other symptoms I didn't have. I didn't change the levels much, except with laying and things like that. I had some more discomfort due to it being the temporary one. The permanent one is great, helps wonderfully and I am glad I decided to do it.
  • Mrs. Step85
    Which manufacturer do you have?
  • Mrs_Step85MMrs_Step85 Posts: 27
    edited 07/29/2015 - 1:11 AM
    I went with Medtronic, I am 30 and I went with them mostly because of them being MRI safe. My PM doc has been with me since 2011, and the reps were amazing, I had 2.. both called or emailed me daily to see how I was doing and still 3 months in email me to check on me. I had originally thought about Boston Scientific, but I dont think they are MRI safe. I work in the medical field, and things like that helped a lot in my decision. You never know when you will need an MRI and I wouldn't want to have it removed.
  • As far as pain how much improved? Thanks for your reply. I am first going to try the RFA but doc wants me to proceed to the implant . Tired of pain but as usual you have the good and bad with everything. You also have age on your side which is great . Sounds like the right decision for you. Where did you do all your research on your device?
  • grammaof9 said:
    As far as pain how much improved? Thanks for your reply. I am first going to try the RFA but doc wants me to proceed to the implant . Tired of pain but as usual you have the good and bad with everything. You also have age on your side which is great . Sounds like the right decision for you. Where did you do all your research on your device?

    I did a lot of research on here, I did a lot of googling and than the information I got from my Pain Management dr. I didn't go into this lightly, or quickly.. I looked into it probably about a year before I even talked to the Dr about it.. and when I read about it all I saw was that it would be outside my body. I now know they were talking about the trial period. My husband was against it as well at first, thinking the same thing. But I did a ton of online research, I look for any information from hospitals, studies. Heck I have even watched the videos of the procedure ( I DO NOT RECOMMEND that to most) I now feel I have made the best decision.. I do not feel tied down to meds, I am able to get around easier, and I feel much better. I know for me I had to research for myself and with the input of my Dr we together decided. I was told that 50% was amazing. I am getting way better than 50. But don't let what others say get you down, our bodies are all different, and what may not work for someone can work for you, and vice versa. So good luck, and even though I am new to it I can try and help you or give you advice if you would like.
  • grammaof9ggrammaof9 Posts: 263
    edited 08/06/2015 - 7:08 PM
    I will continue to research.
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