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cherokee40ccherokee40 Posts: 7
edited 07/22/2015 - 10:28 PM in New Member Introductions
Hello I have been reading many different blogs for almost a yr. And I finally signed up for one. I was injured a yr ago next month had my acdf c5/c6 in January, I felt so much better right after surgery the pain in my arm was gone. 2-3 days after I went home I reached away from my body to pick up a thin throw and had this paralyzing pain go down my neck into my back were I could not move until the intense pain had stopped. My husband stayed with me for 3 weeks straight because I could not care for myself. When I called my NS about this he told me not to lift anything at all and all I could do was walk up and down my hallway. I did get passed this point but I have had pain ever since this happened. I'm 6 months post-op and I am still not fused still on pain meds muscle relaxers and now cymbalta for nerve pain and depression. This has been the hardest thing I have ever dealt with physically. My NS is extremely difficult to speak with everytime I tell him something all he says is that's normal at this point and you have another 2 months to go before complete recovery. If there is someone out there that can help me understand what is going on at this point I would forever be grateful.

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  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Just wondering if anyone has had arm and hand pain numbness and weakness 6 months post op after acdf?
  • Motor1MMotor1 Pittsburgh, PaPosts: 556
    Unfortunately, yes. Nerves can take a long time to heal. In some cases, depending on how bad or how long they were damaged, they might not heal. I know that's hard to hear, but fortunately, there are meds available to help you. You say you're taking cymbalta? How long have you been taking it? If you feel it's not helping, the dosage can be changed or you can try other meds that help with nerve pain.
    You probably won't find a med that will make you totally pain free, but hopefully you can find one that will lessen it enough to help you.
    Walking is always a good distracting for me. It's actually the only form of "exercise" I'm able to do right now.
    Have you done any physical therapy since your surgery?
    I've had 2 cervical fusions. I can relate to what you are going through. Hopefully, your neck has started to fuse, and things will get a little easier for you.
    I'm sorry you are going through this. Just know that you are not alone. There are some wonderful people on this site.
    Take care!
  • Hi thank you for the response. I have been on cymbalta for only a couple of months and it has helped some. It's just I am starting to drop things again and have weakness and some days the pain is over whelming. And I have fused in the middle but not at the top or the bottom. And I have cracking and popping in my neck my NS told me my last visit that my hardware is coming loose and moving. And I did try going to the gym and walking on the treadmill but that increased the pain. But I am going back today as a matter of fact and I am trying it again but not walking as far or as fast and see how that works. Thank you again for your advice and encouragement it truly makes a huge difference in my day.
  • Motor1MMotor1 Pittsburgh, PaPosts: 556
    Make sure that your doctor is ok with you going to the gym & exercising? If your neck hasn't fused & he suspects the hardware is loose, you don't want to risk anything.
    Maybe you can ask to be referred to a pain management doctor?
  • Your right I didn't think of asking him if that would be a wise thing to do or not. I will definitely get with him about that thanks. As far as a pain management doc there is more to my story. Last October I was in Cardiac ICU for :several days because my BP rose so high that I Istarted having chest pain uncontrolled vomiting severe HA anyway long story short my heart is fine that happened, because I was in so much pain from my neck and my shoulder and arm that I had a hypertensive emergency and if I hadn't gone to the ER that night I would have had a stroke or a heart attack per the 8 doctors that were taking care of me. So now I see my primary every 3-4 weeks because I am now on a very high dose of BP medication and pain meds muscle relaxers and the 60mg of cymbalta daily because of this injury. So do you think I should talk with my primary about sending me to pain management and do you think she would? And thanks for the great advice I just walked around the block instead and that was hard enough I thought I was going to have to call my husband to come and pick me up!!!!
  • Motor1MMotor1 Pittsburgh, PaPosts: 556
    Wow. Your heart issues sound scary! I'm glad you got to the ER in time!
    Since you see your primary so often, is he aware of your ongoing issues in your neck? I would say it can't hurt to discuss with him the idea about seeing a pain management doctor?
    I understand about walking. After my 2nd surgery, my husband would only let me walk to the stop sign & back. That's only 2 houses away! But I've built up my distance since then. I have an app on my phone called Map My Walk. It tracks your distance. I've now made it my mission to push myself further each time I walk.
  • Hello everyone it has been awhile since I have been on here. It has been almost 11months since my cervical fusion and its still not healed I am still in alot of pain and the weakness and pain in my right arm is almost unbearable and I am loosing use of my arm more and more everyday. I am scheduled for a CT in 2 weeks to see where exactly its not fused. Can anyone out there give me a uplifting word because I am very depressed I have told my husband I really dont think I can go thru another surgery,the first surgery and the recovery was the worst thing physically I have ever been thru,and he says you have to do it you will be ok.
  • Motor1MMotor1 Pittsburgh, PaPosts: 556
    I am sorry to hear that you still haven't fused & are still having problems.
    I had neck surgery that didn't fuse & had to have a second surgery from the back of neck to finally get a fusion. I wasn't thrilled about having a second surgery, but I knew it was necessary to have.
    You are stronger than you think.
    I know that it is hard not to dwell on it, but you need to focus on positive things.
    I find that when I go for a walk outside, it helps me to clear my head.
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