I am 35. I was diagnosed with Young Onset Parkinson's Disease when I was 32. This disease comes with it's own symptoms that include pain from rigidity, the dystonic cramping (when 2 opposing muscles get a charlie horse at the same time and contorts the limb, foot, neck, torso, etc.), constantly shaking (tremors), stooped posture (which is the spine actually changing shape, not just from not sitting up straight). To add to that, I've had 4 abdominal surgeries, 3 bulging discs, sacroiliac dysfunction, and osteoarthritis in my right hip. I am in a constant state of pain.
Most of it I can tolerate. like the stiffness and even the shooting pains that literally stop me in my tracks. I breath through the pain. I alternate ice and hear. I have lost 96 lbs since December, I go to the gym 3 times a week with a personal trainer and go to physical therapy every two weeks. I wish I could go more but my insurance only allows 35 visits a year.
I take a bunch of medications for my Parkinson's, stack tylenol and advil, klonopin for the dystonic cramping, but no actual pain medications. There are a couple of days a week that I am in so much pain that I can't get out of bed or off the couch, or sleep. On these days, I wonder if suicide would be a better option. And, NO, I am not depressed, generally speaking. I am hurting just that bad. I have tried every non-narcotic under the sun and just about every anti-depressant (lyrica, cymbalta, lexapro, etc, etc, etc) ever made. The anti-depressants and I do not get along. I've had side effects from severe nausea, to uncontrollable fits of anger, to suicidal ideation (the kind where you mean it).
My previous doctors reason for not prescribing narcotic pain medication was because of my age. I fall into the "age of abuse" risk category. Whatever that means. When it comes to narcotics, I found out the hard way with my surgeries, that I am allergic to all but 2 narcotic pain medications, oxycodone and dilaudid. I am going to a pain management doctor that my doc refered me to soon to assess my medication needs. That is good, but the crap side is that I have to pay $300 up front for the first appointment and then they will take my insurance and just pay co-pays for my subsequent appointments. Every pain management place within 100 miles of me does this, I know, I called.
I feel like I am being taken advantage of because I am in pain and I need some relief. The sad thing is, is that I don't want to be prescribed a bunch of pills to take a bunch of times a day. I just want enough to get me through those super bad days when my other pain management techniques aren't working. I'm sorry for the long post, I guess that I just wanted to vent and see if anyone else has been through something similar.
Shallon A. Hardman