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newbie introduction

OnewithdogsOOnewithdogs Posts: 1
edited 08/12/2015 - 9:10 AM in New Member Introductions
Hello everyone my name is Mark. I am new to this support group but not new to cervical surgeries... I broke my neck in the year 2001 when i was in a major collision with no seat belt on.. I broke cervical vertebrae 3 & 4... I had emergency trauma surgery which fused cervical vertebrae 2 - 5 together adding rods for more support....I had a full recovery with minimal prolems...I was able to return to regular physical activities...In the year 2010 while riding motorcycle I was hit head on after a young girl crossed the double yellow line... This time I broke cervical vertebrae 1 along with a long list or other major injuries...I was pretty much bed ridden for a years time..They decided to not operate on c-1... I was told because I am a big guy (6'3 @ 325 lbs) the vertebrae would be stabilized by the muscle surrounding it...over 2 years went by and I had gained 130 lbs and was a a whopping 460 lbs at my biggest over lack of exercise and mobility, poor food choices and depression....I changed my lifestyle completly it took me almost two long years but I was able to lose 210 lbs leaving my weight at 250 lbs... this was all done through clean eating and the minimal exercise I was able to do.... now comes my problem... I worked so hard physically that I advanced degeneration at points above and below my fusion.... there was so much degeneration that caused bruising between c-1 & c-2 on my spinal cord...it came on within a months time and I lost the ability to walk and balance on my own.... the compression between cervical vertebrae c1 and c2 is currently causing problems on many levels...from breathing to going the bathroom....I have gained back 80 lbs over my inability to function....I have been to a neurologist then I was sent to a neurosurgeon who told me it was too complicated for him and I need to find a complex neuro surgeon.... I have been reading and educating myself as to all the methods of surgical intervention.... I have not gotten a chance to see the complex neurosurgeon yet...I am scared to death that they are going to fuse me from cervical vertebrae c-1 to thorasic vertebrae 1...the nerve damage has left me with very painful neuropathy down arms and legs with minimal feeling...I take minimal pain medication because I have had bad experiences with nerve drugs and opiates...I don't take anything right now and I am becoming desperate...I want to put this all behind me and move forward... I have read things on prosthetic vertebrae, I have also read things on returning nerve function after injury to the nerve...I am also open to any clinical trials that I could benefit from.... I am looking to understan other peoples experiences and problems so that I can make the best educated decision for myself... please feel free to message me with any questions or information you may have that I can look into.... not many people can understand my struggle... it is very reassuring to come into this forum and know that people are having the same problems or very similar experiences...

Welcome to Spine-Health

One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.

Here are some questions that you should answer:

  • - When did this first start?

    . Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)

  • . Which doctor did you start with? Ie Primary Care Physician
    . Who are you currently seeing?
- What Conservative treatments have you had? Which ones?

  • . Physical Therapy
    . Ultrasound / Tens unit
    . Spinal Injections
    . Acupuncture
    . Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)

  • . Summarize the results, please do not post all details, we cannot analyze them
    . How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)

  • . Name of Medication
    . How long have you been using this?
    . Results
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ There you will find much information that will

  • - Help you better utilize the Spine-Health system
    - Provide pointers on how to make your threads / posts
    - Tips on how to create your avatar (your picture), posting images, etc
    - General pieces of valuable information

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide

  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
    - Medical advice of any kind
    - Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : 08/12/15 15:10 est

Tuff times don't last tuff people do !!!


  • Hi Mark,

    I don't have any advice to share but wanted to say hello from a fellow broken cervical spine person. I am new to this site as well and still trying to figure out how to get around on here.
    I sufferred a broken neck back in 2000 after being hit by an out-of-control skiier while snowboarding. As a result C-4,5 & 6 were fused. Tomorrow I am having another neck surgery, this one a foraminotomy at C-6,7.
    Your injuries sound horrible and I aplaud you for taking minimal pain medication. But you must be suffering... That is such a tricky road, either way. I, too have fear of being fused up and down the C-spine. That is why my neurosurguon is trying the foraminotomy first, we shall see.
    I hope you find some hope and help here.
    Be well,
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