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headache after myelogram!!!!!

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:19 AM in Spinal Injections
I had a myelogram on Monday and now I am leaking spinal fluid which is causing the worst headaches I have EVER had in my life. For those of you who don't know, a myelogarm is a test where dye is injected in your spinal cord and then xrays are taken.I was suffering for 3 days with the headache before my doctor would even take the time to call me back. I would have gone to the hospital but I had no one to drive me and no baby sitter. Anyways, now I am on strict bedrest (I can only get up to use the bathroom) and I am on Fiorinal for pain and Cipro so I don't get meningitis. If my headache is not gone by Tuesday I might have to get a bloodpatch. This is just yet one more thing to go wrong in the 3 months since my surgery. I can't take it any more!! I just feel like crying all the time and to make matters worse the wheather has been absolutely goreous here and I have had to miss out on so much lately. Sorry to complain but I really needed to vent.


  • am sorry that you have had to suffer so....hopefully this will work itself out and you won't have to go for the blood patch. Don't worry about venting , that is one of the reasons that SH is here. So sweetie , vent away , anytime that you need to. We will be here for you.....please keep us posted as to how you are doing. Take care....Miki
  • I had a spinal headache after mine also. Trouble was, the NS did it over my L4-L5-S1 fusion the first blood patch did not take. They took me back in the next day and pushed some contrast dye in first and then the blood, that one took and immediate relief! Oh I feel for you, I have had many kids, back surgery and pain, plus migraines..nothing compares to this. It was interesting how they want to you to drink alot,but then after you get up to go to the bathroom it takes an hour to recover!
  • Its true about the drinking of water. I've been chugging it and then having to go to the bathroom every hour which makes the headache come back and then it takes so long for it to go away. I am feeling so much better now so I don't think I'll need a blood patch. The hole in my spinal cord must be sealed up. I tell you, I never want to get a headache like that again. That is the worst pain I have ever felt in my life. Surgery,drug free child birth, and broken bones are nothing compared to that kind of headache. Thank you for your kind words Miki. They really meant a lot.
  • ever helped me with the spinal headaches (I've had 2 too many)......and it is immediate.

    I sure hope you get better, but THEY CAN FIX IT FAST.....so don't go through undue suffering. There's NOTIHING ON EARTH like a SPINAL HEADACHE !!

  • :jawdrop: I was taken to ER with mine they gave me pain meds which I found out the hard way I was allergic too, but I also had a caffine bag hanging over my bed going into my IV and they gave me something else, but that didn't work. I was screaming at the top of my lungs my head was killing me, they knew I wasn't kidding them. ER doc asked what had happened I told them I had an myleogram done he said he was going to see if the pain meds would work first and sent me home with three shots of pain meds in IV, then two high dosage pain pills and told me if this doesn't get any better come back. Believe me I didn't want to leave. I was the first person waiting back in the ER room with the same nurse saying all that meds we gave you didn't work. DUH sure lock!!!
    She again started the IV all over again, I should have kept the last one in. lol The surgery doc came in asked me why did I need a blood patch. He did listen to me and took me back to the floroscopy room and looked said oh my gosh!! :jawdrop: he asked me how long have you been like this?
    Well lets see I came in the day before complaining of major headaches and noone would listen to me, and they sent me home which is now the reason I'm here again. I had a huge hole out of my back where they done the myleogram. He rushed me in to have a blood patch done it took two times for me too.
    Well it only happens to very small % of people so if your getting one done don't let me scare you sorry, but I would be warned of the spinal headaches they are nothing compared to regular headaches nor mirgrains I have both of them now.

  • I had a myelogram when I was hospitalized a few hours after having the myelogram I had started to get really bad spinal headaches they gave me morphine for 3 days as they thought it was just headaches they then did a ct and discovered I was leaking spinal fluid they had to do a blood patch that was not fun @ all.
  • ~X( oh my does that headache hurt! hope you are out of that terrible space by now. good luck and take good care! Jenny :)
  • Holy crap am I happy i found this. I thought i might be the only one with this problem. Had disc replacment on L4-L5, L5-S1 last year July. Have been in terrible pain since then and my NS sent me in for 3 Epidural (blocks) which did nothing except bruise me. Finally the NS decided to do a CT and Myelogram in January. Didn't think things could get worse until the headache started the next day, had to spend two extra days in the hospital with pain. My 'fantastic' NS said that there is no more he can do for me as his discs are fine and my headache is probably just tension. I have now moved to a new NS who actually seems to want to help me. Have had a CT done and am doing MRI on Friday as there seems to be cerebrospinal fluid leaking. Aint that just sweet. Have also now done Facet blocks on both L4-L5-S1 and yes you guessed it, looks like I am going to have to now have a fusion done as they are so damaged the docs are surprised I am walking. Have a two year old boy and a girl arriving in August so at least life isn't that bad. Now that i have vented just wanted to say have a great day and that be grateful for what we have because yes it actually could be worse.
    But now that I have vented a bit
  • Howard5091HHoward5091 Posts: 1
    edited 12/05/2012 - 9:27 AM
    Are you supposed to drink caffeine a few days before to lesson the change of a headache, i am told after the procedure its not a good idea why is that so? i am confused . i am scared . does anyone out there care to explain their experience they had with this test. so i know what to expect they are telling me as long as you drink lots of caffeine you wont get the headache.
    Mary Howard
  • RickilalasRRickilalas Posts: 559
    edited 12/05/2012 - 10:41 PM
    Mylegrams with contrast are not hard to do. I had two last year which were both full spine (cervical thorac and lumbar). The whole process is pretty easy, they do a epidural to get the contrast in and then a tilt table to get the contrast to the areas they need it. It has to flow into the spinal fluid without going into your head.
    After both mylegrams they told me to be sure to keep my head above everything else. Head on a pillow while you lay down does this. My next instruction was to start drinking coke or anything with caffine in it. On the first one I did not do that. I got such a bad headache it made me sick. At that point I started drinking tea with caffine and it took many hours before I felt better.

    The second time I took a bottle of coke with me and started drinking it on the way home from the hospital. I had another one at home and this time I felt great. I didn't sleep much that night but I did not have a headache or get sick
    So I feel it works. I know others have posted that it doesn't work or should make no difference but it sure did for me.
    The most interesting part of this for me is that this hospital has a religious background and does not have or sale anything with caffine. On the second trip I asked why and how it makes a difference. They explained that it opens your viens and helps wash the caffine from your system. I did two cokes and then some water and in about six hours I felt fine.

    Good Luck
  • Shugs first post was related to a blood patch.
    This is Rare but after a epidural some people have a leak of the spinal fluid. Where the needle enters the dura when removed it does not seal right away. I have not been through that yet but have been told what to expect if it happens.
    They say its the worst headache there is. The doctor should explain this before you have the mylegram done.
    If you have had epidural injections with out any problems this should have the same result.

    How long after the epidural did you get the headaches? I was just wondering if its quick or hours later.
    I was told if I got a severe headache after leaving I could come back through the ER for a blood patch.
  • Had the myleogram on Friday and spent all of Saturday and Sunday flat on my back. Doc said that was all I could due to stop it. Made the mistake of driving to work on Monday and only last 2 hours before having to go home and lay down for 2 more days before it finally eased off.
    The test was worth it as it showed the nerve impingment that was causing a loss of strength and control in my left arm.
    laminectomy c4/c5 2008, ACDF c4-c7 Jan 20 2014 sched
  • I have had to do a blood patch years before so know the headache... I had mylegram 9 days ago and 3 doays started feeling tenderness starting over brows. Now it is a full blown migraine. I am a cronic pain patient and been for years, so I have medicines and even have caffeine migraine meds. question is it dangerous to wait if I do possible have spinal cord leakage? Thanks you so much best Wishes to ALL!! God Bless!
  • Tc50TTc50 Posts: 1
    edited 06/27/2015 - 1:59 PM
    Thanks for this forum. I have been patiently following the recommendations from dr . I have rested with fluids and seems better after 24-48 hours. Is it common for pressure headaches just in quick motions or bending over to linger? They aren't as severe so was assuming it's slow recovery.. Blood patch has been discussed but hope to seal .

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  • jlabenbergjjlabenberg Posts: 1
    edited 08/03/2015 - 3:34 AM
    Myelogram was Wednesday and it's now Sunday and the headaches are not fun. Both Friday and Saturday could only go to work for a few hours then had to come home and I never go home, I'm as stoic as they come. I woke up this morning thinking it had passed but already I feel the headache coming back. Is this just something I have to live with for a while? if I was independently wealthy or actually worked at a place that I got sick leave i'd just take off but this is getting old fast. I'm lucky I have an understanding boss but she'll only take so much I'm sure. Is there a point in all of this that I need to call my neurosurgeon back? He's not the most touchy feely type of person. I guess I needed to just vent - I know I'm not offering any solution here just a problem and yes I've read through all the other posts so anyone with any advice?

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  • Good afternoon,
     I just have a few questions, I just got my Myelogram yesterday, and my back has been hurting pretty bad, but every since I woke up this morning I've had a headache from h@$!, my question is how long does it take to go away, and what are the signs for me to go to the hospital... I have read everyone of your stories and everyones is different, and seem extremely painful, I suffer with chronic migraine already  and have a pretty high pain tolerance when it comes to migraines, but this head is worse than any headache I've ever encountered, I'm just trying to find out what the signs are for me to go to the hospital, and what I need to tell them, I have an extremely bad headache and my vision seems a bit blurry.. sorry for the complaining.. just don't have a lot of nolage when it comes to this Myelogram..

  • I often use lavender. It is a right choice as one of the greatest benefits of lavender is to cope with headaches.
    If you are one of people who struggle with headaches regularly, simply follow these steps to put an end to this problem.

    -Mix some drops of lavender and peppermint oil.
    -Rub the mixture over the back of your neck.
    -Inhale the mixture at the same time.

    Here is my favorite website: http://www.topix.com/forum/health/headache/TO...
  • I often use lavender to treat headache. Because it is a right choice as one of the greatest benefits of lavender is to cope with headaches.
    -Mix some drops of lavender and peppermint oil.

    -Rub the mixture over the back of your neck.

    -Inhale the mixture at the same time.

    Here is my favorite website: https://wikihomenutrition.com/lavender-health-benefits/#4_Headaches

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