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I had a L-5 S-1 fusion almost 3 years ago with zero back pain for 1 year afterward. 3 surgeons during the first 2 years stated I was solidly fused as well as all radiologists . Many Ct scans, bone scan and myelogram. I cannot have MRI's. This past year I was diagnosed with Adhesive Arachnoiditis where lumbar nerves are clumped together and is an excruciating disease. Lately 2 neurosurgeons have said I am not solidly fused but hardware is in place. My pain is mostly bilateral gluteal radiating to front of pelvis. I am very disabled by the pain but there is no leg pain. The problem is there is disagreement about the state of my fusion and even some disagreement about the Adhesive Arachnoiditis. THe AA has been diagnosed by a radiologist and 2 big specialists in the field. If you have AA you should never have spine surgery. Why can these surgeons not agree about the state of the fusion? I have a pain pump with fentanyl, strong oral mess and nothing helps which leads me to believe the pain is all nerve. Before my fusion opioids worked. any input? I can not live in this pain!
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