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samhoustonssamhouston Posts: 3
edited 08/20/2015 - 5:22 PM in Chronic Pain

Hello, I'm a 26 year old female. No children and in chronic pain. Possibly Sacroiliac Joint Dysfunction. Had on SI injection, usually im a 7/8 and the injection put me at a 3/4 for 4 days. I got in a "T-bone" car accident in 2008. My mistake was not getting my back x-rayed. After 4 years of being misdiagnosed, and consistently getting worse, I'm considering the SI Fusion surgery. Pt-helped sorta, it was an hour bus ride their and an hour back so i was pretty miserable most of it. Sitting is the worst and makes the pain double. I currently stretch everyday but no relief.

My left hip "pops" and "clicks" and I swear is moving around. It hurts and aches. On my si joint, on my femur bone down my leg to the top of my knee. Numbing my big toe. Everyday, none-stop. I. Can. Not.Live.Like.This

But Im worried of how the implants would affect my life afterward. After it is all healed. Ive googled everything and havent found much, (which could be a really good thing.) Currently I lay in bed (a lot). But I can still ride my bike and go on a hike(maybe i haven't tried in the last year, but i think i could with one pain killer.)

What is it like with the fusion?
Is biking/running difficult?
Could you camp?
Maybe climb a tree?
How about sit up all night and play video games/film edit?

I'm just so scared that I could regret the surgery if it impairs my life more than it is right now. I know you cant rock climb with the implants. I think i can part with that. But my bike. Ughh Im so scared. Waiting to get my second injection approved and seeing pain management in 3 weeks. Considering going on a yoga/rock climbing binge.

Also, my lower spine is totally crooked, would that affect anything with the fusion? I had 2 injections/nerve blocks in my spine to see if that was causing the pain that was not. It is leaning left, and that is the side with all my pain.

Thank you for your time.

Welcome to Spine-Health

One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.

Here are some questions that you should answer:

  • - When did this first start?

    . Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)

  • . Which doctor did you start with? Ie Primary Care Physician
    . Who are you currently seeing?
- What Conservative treatments have you had? Which ones?

  • . Physical Therapy
    . Ultrasound / Tens unit
    . Spinal Injections
    . Acupuncture
    . Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)

  • . Summarize the results, please do not post all details, we cannot analyze them
    . How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)

  • . Name of Medication
    . How long have you been using this?
    . Results
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

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I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ There you will find much information that will

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Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide

  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
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What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : 08/20/15 23:22 est


  • Hi and welcome. I had SI joint fusions (both sides) with IFUse 2 years ago. The fusions were 6 months apart. 19 years ago I was knocked unconscious by a snowboarder which totally wrecked my spine and put my SI joint in another time zone. After years of PT, prolotherapy, acupuncture, manipulation, rhyzotomies, injections I had my spine fused starting a little at a time. I am now fused L1-S1 and SI joints. The fusions were the only thing that took away the pain, especially the SI.

    I am very active, or was, and still try to be. I can no longer run altho I know of people who have had SI joint fusions and have returned to running. I am able to ride my bike but it is limited because I am so fused. I swim as much as I can. I also try and walk.

    The gold standard for SI joint fusion is to have 2 xray guided injections that provide some relief to make sure it is the SI causing pain. There is a SI joint fusion support group on facebook IFuse for SI joint stabilization that might be helpful.

    Good luck and keep me posted.

    L4/L5 laminectomy, L4/L5 360 fusion with instrumentation, L1 to L5 fusion, L5/S1 fusion w/ disc replacement, left and right SI joints fused.
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