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Hopefully I finally found somewhere to go for support at Spine-health!

marlagaymmarlagay Posts: 3
edited 08/21/2015 - 9:18 AM in New Member Introductions
I'm a 65 year old woman. I have endured a great deal of extreme chronic pain since I was 32 years old, but more just keeps coming! It was thought to be from a car accident when I was 20 years old. Neurosurgeons don't seem to want to touch me :(
• herniated, bulging and degenerated discs in the Cervical & Lumbar areas
• Myelomalacia in the Cervical  
• 3 benign hemangioma tumours at T2, T7 and T12, along with degeneration (seeing neurosurgeon in November)  
• Pain radiates through shoulders, ribs, arms, groin, hips, legs - name it, I've had it at some point
• numbness in both legs & feet
I'm extremely limited in activity and socializing, so I also need some social chit-chat to pass the time occasionally.  I had to retire when I was only 56. My small family and few friends try to be supportive, but they really don't understand, and truthfully I hope they never personally find out the pain I have to endure daily. I've finally given in to using a cane on outings recently, and it's amazing how much more understanding people are once that it is a more "visible" disability, including my own grown son.


  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
    Here are just some of the highlights that are available as tabs on the main Spine-Health menu bar

    Spine-Health Main Menu Tabs

    Conditions Detailed medical libraries of articles and videos that address almost every spinal condition.
    Treatment List of treatments to the conditions identified by Spine-Health.
    Wellness Section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.
    Medical Articles
    Pain Forums These are the forums you will be using
    Find A Doctor This provides with a method to search for doctors in various locations.
    Videos Index to all Spine-Health Videos

    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


    - It is very important to understand the Forum Rules to make sure all of your posts[u] do not violate any of the rules.[/u]

    - All new members must read our FAQ in order to understand the layout of the forums, how to navigate through the forums, helpful terms, how to make effective threads and posts, plus a link index to many of the important medical forums and key medical articles on Spine-Health Forum FAQ

    I am positive any member, new or old will find this Chroinc Pain - Step by Step thread very valuable.

    Here are some links that all new members need to review to create effective threads and more

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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • SavageSavage United StatesPosts: 5,476
    I share in your feeling misunderstood by loved ones. And it was well put when you said you would never want them to feel the pain to really understand. Very loving!

    On this site, can use search upper right on page, to find ....post "The Spoon Theory"and also, "Letter to Normals".
    It may or may not be helpful for others to understand, but may be helpful for you to know you are not alone.

    For my few people, the spoon theory was more easily understood, when I would visit and I would say they may need to pick which activity for the day they wanted me to attend as I don't have enough "spoons" for both.
    They may not have understood the pain but seemed closer to understanding my exhaustion.

    But, if I wasn't living this life, I'd have difficulty understanding, also! :)
    You're not alone! You've found a great site with shared experiences
    Spine-Health Moderator
    Please read my medical history at: Medical History

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