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Hello l'm new here

janice7hjjanice7h Posts: 1
edited 08/30/2015 - 9:15 AM in Lower Back Pain
Im in my 50's.....female....if it matters. I have had chronic pain since 2004. Right now my doctor is weaning me off hydromorphone. Ok...Im cool with that but how am I suppose to deal with the pain? I have been on the same dosage for years. It took the edge off. I feel that I am not addicted but I may be wrong. I feel as if my doctor treats me like it's all in my head.
I'm divorced, my kids are grown and gone, I am not working but living off a disability pension which started after I got hurt at work. I live alone although I am trying to find a roomate.
Dating is doable but once they see my pain...they disappear. My girlfriends are supportive but their lives of husbands and travel make me feel so very alone.
I would like to connect with people who understand....otherwise I just mighy go crazy.


  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
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    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


    - It is very important to understand the Forum Rules to make sure all of your posts[u] do not violate any of the rules.[/u]

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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • SavageSavage United StatesPosts: 5,427
    Is it your primary doctor who is tapering the medication? Or do you see a pain management doctor?
    Curious about your chronic pain...is it spine related? Or other?

    You certainly found the site with people who understand chronic pain. You are not alone!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • danika1recoviaddanika1recovia Posts: 3
    edited 08/31/2015 - 8:39 AM
    Hi there,
    That is a tough spot to be in. Question for you, have you looked into any alternatives to your medication? Detoxing or acupuncture may help you transition into a life without it! Also, have you thought about a functional rehabilitation program? It is a program that focuses on healing the patients as a whole, incorporating behavioral medicine, interventional pain management, and physical therapy. That may also be helpful for you! If you would like more information I would be happy to provide some


    Before you try any supplement, herb, over the counter item, exercise program, mechanical aid, brace, etc always consult with your doctor to make sure you get their approval.
    Some of these products may be very effective, but no two individuals or medical conditions are alike. What works for one, may cause trouble for another..

    Liz, Spine-Health System Moderator
  • 2dgs4cmpany22dgs4cmpany Posts: 200
    edited 08/31/2015 - 9:55 AM
    Alone. I'm glad you found this forum and in it you will see many others like yourself. I've never taken the med you wrote, so I don't know what that is like.

    I have had a doctor tell me my pain was in my head. It wasn't actually, it was in my back. I wasted a year thinking I was losing it because of that first doctor.

    Luckily another doctor ordered an Mri and found the source of my pain. I've been in and out of chronic pain for 14 years. I have been off meds and relieved sporadically for up to 8 years in that time too. Keep looking for a doctor that is interested in your quality of life. You are the consumer. You are not a drug seeker. Go to doctors and ask how they can help relieve your pain. Yes, yes it sucks to start over. And it will be hard. And you will have to wait for them to run tests that you probably already know the answer to. But this is what you can do and you can do it Janice.

    We support you and do not judge. We are chronic pain sufferers and we have endured enough judgement for a lifetime. I'm guessing since he said its in your head you are suffering an invisible illness. I'm so sorry Janice. But but but: you can seek a better life. Go to another doctor.
  • ceeccee Posts: 22
    edited 08/31/2015 - 10:11 PM
    I'm new here too and trying to figure out how to word my situation but just wanted to say you are definitely not alone.


    Please click on link for helpful information
    Welcome to Spine-Health
    Liz -Spine-health Moderator
  • 4:11am girl? Sorry for your sleep or lack of! Been there for sure.

    I was up late reading the faq and all the new member stuff. If is so helpful, interesting..and I can imagine what your feeling cee. I too felt that way and bet others did too.each one of us has a heck of a story by the time we are landing here. I want to hear yours, so please share!

    How u doin today Janice? Pain level? Any new thoughts about what you want to do? Thinking of you, not pressuring.

    I have the lovely nerve pinch today, she write sarcastically. Slept like a baby and when I put my feet out of bed it roared. It's left side, left leg..inner thigh when sitting down to ankle and when hobbling from back down front down outside to ankle. I hate e pain and more so worry I will overdo and damage nerve. So I'm using walker today when I have to move, otherwise bed day. Working on a crochet blanket. This one is a giant granny square with over ten yarn types and textures. I don't know who will receive it yet. And when I switch yarns I knotted and haven't threaded the ends perfectly so I'm frustrated it's not my best work. However, the colors are extremely beautiful and bright and cheery. I know it will warm someone's soul when I figure out who. Right now it's my lifesaver. How about u guys? Anyone have something that brings them hope like this!
  • ceeccee Posts: 22
    edited 09/03/2015 - 2:16 PM
    Hii all.
    Thinking of you Janice.
    2dgs4cmpany, that's so sweet. Yes, we all have our stories. Your beautiful colorful granny square story reminds me of my very favorite scene from Harold and the Search for Happiness. It's on Netflix. When all the colored flags fly.
    How you doing today?
  • There is nothing better than the day you wake and don't feel cloudy or exhausted. Then the feet fall out of the bed and Gravity is applied and then..yeppers, the pain. But on this day I can take it. I take my medication, I prepare to leave the house 2 1/2 hours of prep, for pt. will it help today? It sure might!husband returning from travel and a long weekend ahead: hoping that each day is like this. The pain is there. I see him. I will manage him. (The pain, not the hubby) :)

    How are you guys? Wishing you comfort
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