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Need answers crushed disc apparently crushing my spinal cord

DahleighDDahleigh Posts: 1
edited 09/04/2015 - 11:32 PM in Lower Back Pain
Hi i was diognosed with a degenerative spine and have a bulging disc and a crushed disc at L4, L5 and S1. and they also suspect i have fibromyalgia but this question is regarding my back. my back has been progressively getting worse and within a year i have ended up barely unable to walk, i use crutches in the house but outside i have to use a wheelchair. in the home i have aids aswell to help me in the bath and in bed as in the morning the pain is so bad i am literally screaming and i just cant move so i now have a bed lift ... i am only 38. i have had injections in my back twice one steroid and one epidural neither worked and since my second injection the steroid one i have been constipated. neither of these worked so i have now been put on fentanyl patched that have now crept up to 50mcg, gabbapentin 300mg 3 times a day, ibruprofen 400mg 3 times a day and 10mg of oramorph as an when for breakthrough pain... i am still in constant pain with this nerve pain. anyway a few months ago i noticed a change in what was going on i now constantly have nerve pain running down my whole leg into my foot which often goes numb. i also have noticed a change in my bladder control , the flow of my urine is really slow and i have on occasions leaked urine. i went to see my consultant but he wouldnt even let me speak to tell him to tell him in fact he was so rude i put in a complaint against him ... i carried on with the pain getting so bad that in the end i went to see my GP to tell him he was livid at my consultant and said that it really sounds dangerous now and that it sounds like my spinal cord is being affected, he phoned the hospital and demanded i get seen urgently and explained my symptoms and the person he spoke to agreed that yes it did sound like that and i was given an appointment a week later. that appointment was yesterday ... i got there and was shocked when the man that saw me was a physio .as i walked in and told him my symptoms he had a go at me and said i should have gone to A7E when it first happened as its really dangerous (well i was not to know)... i mean hello!! he did some really barbaric tests on my legs even though i told him to be careful as i have had surgery on both knees and one wasn't that long ago so was still sore, he then said it needed an urgent MRI ... i have already had one but i found it very traumatic as i suffer with claustrophobia so i innocently asked if i could be sedated to have it done .. the physio totally went into one on me ending up with me in tears and walking out without even making the MRI appointment ... i never refused it and he made it seem like i had. he also informed me that the ony consutant he would talk to and make me see is the one i have put in a complaint against ... i instantly went back to my GP and asked if i could go to another hospital he said that would take too long and he is getting really worried so said he would get hold of the hospital and get me that emergency MRI .. i hopefully should know more on monday about this. there is talk of surgery being needed possibly spine fusion but i am not sure a few surgeries where mentioned.

Anyway in all of this i was never told why it was so dangerous? what could happen? and what i should or should not be doing in the meantime to safeguard my back? i was in such a state about it i just didnt think to asl but i am now so worried about it as they did all look really concerned about it .. please can anyone answer these questions so i can make sure nothing bad happens or even let me know what could happen and why they are so concerned about it?

thankyou in advance

i am very worried and so annoyed that doctor did not let me speak in the first place

Please remember that no one at Spine-Health is a formally trained medical professional. Everything that is posted here is based on personal experiences and perhaps additional research.

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  • SavageSavage United StatesPosts: 5,476
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  • Dahleigh, I was sad to hear all you have gone through. I'm glad you found this site, it has a lot of helpful information. I also hope you hear from the hospital soon, and that you are treated like a wonderful human. More importantly I hope you get some answers and pain relief soon.

    I too lose all feeling in legs. This is a new symptom for me too. Previously it was nerve pain down leg, then numbness, and mainly my feet. Now I constantly go numb in left leg except when laying down. It is disconcerting, but not painful. The pain is only when I try to move and then I get the lightning hot shot of pain and or the tickling coming back alive feeling. My situation calls for surgery. I meet with my surgeon this coming week to go over the plan. In meantime I was told to limit activity so as to not damage nerves.

    I had an experience not even close to yours. I hear you when you say the consultant and physio didn't let you speak..this isn't exactly the situation for me but I had gotten to a no help moment and this is how I solved it. Hope this helps: I was trying to set up an apt with a specialist I had previously seen a year and half ago. When I saw him then, he knew he was my second opinion. He agreed with my surgeons approach. He could not get me operated on for 4 months, the first doctor had me scheduled in two weeks. So this second opinion doctor said to go with the original and come and establish with me when done and we will go from there.

    Year and a half later I have another level acting up (incidentally he said it would while the original dr was not concerned with it). Anyways, I call up, he is on vacation and so is nurse. I said no problem, may I drop off mri and report and have them call me back to schedule me? They said yes. Week later the nurse of the doctor calls and is just on the tip of ridiculously rude. I keep my calm. She is saying there is no way I will ever be seen by this doctor as I already saw him and chose another doctor. I'm unseeable, do not call again where her words. I Lost It! I cried on the phone, never have before. I did not yell, but I between sobs told the nurse of the conversation of doctor and that my husband and the doctors' pa were in exam room and he (dr) would see me. I told her how horrible this call was for me and that while I know she feels she has to be matter of fact, I think that she would be traumatized by receiving a call like this, especially her tone. She said she thought what I was telling her to be unlikely. I could have been rude to her..I certainly felt I had the right, but I didn't. She ended call with she would bring this to dr attention but not to expect to hear from them. As I hung up I was thinking the same..why on earth would I hire a dr with a staff like this? I was devastated and figured would have to start over. I did not expect to hear from them.

    A week later the nurse called back and apologized and set up appointment. I accepted apology. I did not go at her, even though I felt I had a right to. It wasn't my need. I forgave and moved on to my need, help for my back.

    I can tell you have had some bad experiences with staff. I would encourage you to fill your need of getting pain away and being beyond nice to all staff you come across. I am in no way saying anything is your fault or excusing rude behavior. We are not punching bags. But we also know exactly who we are and only need to focus on the elephant in the room, which is the pain. If you come across these people again, focus on your needs of getting pain solved. They are licensed and registered health care people. Perhaps they were having a bad day? It's no excuse for not hearing you. But you are going to have to overlook (I know that is hard) attitude and get the help your poor body needs!

    Good luck this week, hope they get you mri, hope it helps guide them to help you be pain free.
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