Hi i was diognosed with a degenerative spine and have a bulging disc and a crushed disc at L4, L5 and S1. and they also suspect i have fibromyalgia but this question is regarding my back. my back has been progressively getting worse and within a year i have ended up barely unable to walk, i use crutches in the house but outside i have to use a wheelchair. in the home i have aids aswell to help me in the bath and in bed as in the morning the pain is so bad i am literally screaming and i just cant move so i now have a bed lift ... i am only 38. i have had injections in my back twice one steroid and one epidural neither worked and since my second injection the steroid one i have been constipated. neither of these worked so i have now been put on fentanyl patched that have now crept up to 50mcg, gabbapentin 300mg 3 times a day, ibruprofen 400mg 3 times a day and 10mg of oramorph as an when for breakthrough pain... i am still in constant pain with this nerve pain. anyway a few months ago i noticed a change in what was going on i now constantly have nerve pain running down my whole leg into my foot which often goes numb. i also have noticed a change in my bladder control , the flow of my urine is really slow and i have on occasions leaked urine. i went to see my consultant but he wouldnt even let me speak to tell him to tell him in fact he was so rude i put in a complaint against him ... i carried on with the pain getting so bad that in the end i went to see my GP to tell him he was livid at my consultant and said that it really sounds dangerous now and that it sounds like my spinal cord is being affected, he phoned the hospital and demanded i get seen urgently and explained my symptoms and the person he spoke to agreed that yes it did sound like that and i was given an appointment a week later. that appointment was yesterday ... i got there and was shocked when the man that saw me was a physio .as i walked in and told him my symptoms he had a go at me and said i should have gone to A7E when it first happened as its really dangerous (well i was not to know)... i mean hello!! he did some really barbaric tests on my legs even though i told him to be careful as i have had surgery on both knees and one wasn't that long ago so was still sore, he then said it needed an urgent MRI ... i have already had one but i found it very traumatic as i suffer with claustrophobia so i innocently asked if i could be sedated to have it done .. the physio totally went into one on me ending up with me in tears and walking out without even making the MRI appointment ... i never refused it and he made it seem like i had. he also informed me that the ony consutant he would talk to and make me see is the one i have put in a complaint against ... i instantly went back to my GP and asked if i could go to another hospital he said that would take too long and he is getting really worried so said he would get hold of the hospital and get me that emergency MRI .. i hopefully should know more on monday about this. there is talk of surgery being needed possibly spine fusion but i am not sure a few surgeries where mentioned.
Anyway in all of this i was never told why it was so dangerous? what could happen? and what i should or should not be doing in the meantime to safeguard my back? i was in such a state about it i just didnt think to asl but i am now so worried about it as they did all look really concerned about it .. please can anyone answer these questions so i can make sure nothing bad happens or even let me know what could happen and why they are so concerned about it?
thankyou in advance
i am very worried and so annoyed that doctor did not let me speak in the first place
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Liz -Spine-health Moderator