I had spinal surgery March last year. It was a disc replacement in the lower back. I had been dancing around the surgery for years, as I’ve had a bad back for more than 20 years, but there’s never any certainty with surgery – especially spinal surgery – so I never had the guts to actually go through with it before last year. Eight years after my lower back pain started I also got diagnosed with Dystonia (Painful Leg & Moving Toe). I finally decided to go through with my surgery because it was getting worse and worse and at the time of surgery I had not had one decent night’s sleep in at least a year. But obviously there were no guaranties!
After my surgery it took me a couple of month to get back on my feet. I started at work after 3 months and not full time right away. But I was definitely slowly getting better. Eight month after my surgery I get this crazy pain in my feet and cramp that just will not stop. My Surgeon advises me that it is my Dystonia mixed with something called Burning Foot Syndrome (or Warm/Hot Foot Syndrome) and that it will be better in time. During this time all I could do was lie down and that wasn’t pain free by no means, but it was better than anything else (walking, standing, sitting).
It took me 6 weeks before I could get back to work and I started slowly this time too, but this time with my normal hours, but just doing only what I could actually manage at work. After I started at work I could barely manage to get through a day. I would go home and straight into bed and I couldn’t even brush my teeth or make any food or get any food, as I simply could not bear to stand on my feet one more second.
Finally I slowly got better and I worked hard to regain my strength and almost did. Then it happened again – A year and a half after surgery.
I stuffed full of pills, but they don’t seem to help, I’m tired, frustrated and I have very little hope for the future. What’s the use of a back that doesn’t hurt, when all you can do is lie in a bed all day 24/7. After 6 weeks I tried getting back to work. Managed a week and then I have to lie down again and be off work.
To be honest it doesn’t feel like it’s getting any better – quite the opposite! Furthermore my symptoms seem to change – and still do after surgery. Right now one of the new things is that when I need to go to the toilet (not just to pee, but otherwise) I get cramps. When I have been to the toilet the cramp doesn’t disappear, but gets better.
I have to lie with my legs bend. If I stretch them out I get cramps in my toes and it can go on for hours. Before my period the cramps will often become a lot worse.
The last 3 years have been hell (up to my surgery as well as after) and I’m at the end of my rope now – Don’t know what to do! I’m tired, full of pills and yet I still have cramps to the level where I have to be off work for weeks. I’m weak, lack focus and just sleep or lie awake wondering what else the future will bring.
Does anyone out there have any suggestions? Have anyone tried something similar? Been in the same situation?
Sorry for the long message!