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New Stimulator pain

skyeblue021969sskyeblue021969 Posts: 1
edited 09/13/2015 - 9:25 PM in Spinal Cord Stimulation
I am one week post implant for my medtronic neurostimulator. I broke my tailbone 6 years ago and that started all of my back problems. I have had a collapsed disc and degenrative disc, severe arthritis and many more issues. My Dr. refused to put me on strong medication for treatment so I have been dealing with severe pain for years with little relief I have been on many nerve meds with little relief. I have severe muscle spasms and am on a large doses of baclofen to help treat them. I went through the trial for the medtronic unit and had some relief and I was very disappointed when they had to disconnect me at the end of the trial as this was the best I had felt in years. I just had me permanent stim implanted and I love it. I am having alot of site pain where the unit was implanted and where my lead was placed and I'm taking percaset for the pain but its not helping. How long does the pain normally last post op? I am an over doer and because I felt good I tried to ride a bicycle (big mistake) I had shocking pains through my butt and leg so I will not be repeating this until I am completely healed. Dr says 6 weeks. Let me know about your post op experiences. I am also having problems with ss disability none of my drs pain or pc want to be responsible for completing disability paperwork and I am having to deal with disability drs through the system I am unsure what to do about this I tell disability I am unable to sit at a job or lift they tell me I can sit and can lift up to 10 lbs. has anyone had disabitly issues and should I get a lawyer to help me with these issues.


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  • edited 09/15/2015 - 10:24 AM
    I had 2 fusions and my Medtronic stim surgery washouts as painful for first 4 weeks and the surgical pain didn't go completely away til 8 weeks. I also did too much. You really need to rest. No twisting. No lifting over 3 lbs. I know it's hard but I'm having trouble now because things got out of whack-and like you it is working great on nerve pain. I haven't done disability so I don't know but I've heard not to use a lawyer until you get denied. They take percentage forever. They can help get retroactive. I'd Google as much as you can. You will need a dr to fill out paperwork with or without a lawyer so it just maybe a matter of finding a good dr. Take care.

    Welcome to Spine-Health
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    ~ spine-health moderator, savage
  • Dale0715DDale0715 Posts: 1
    edited 09/29/2015 - 11:49 AM
    Hello, I have the last of three bilateral steroid injections next week 10/6. This series has not helped with my pain and has actually increased my symptoms (numbness, burning, tingling) in my right thigh, lower leg, and right foot. I had a triple lumbar fusion 4/26/12 of L3, L4, L5,S1 with bilateral incisions lower back for L5-S1 and an incision left side for the L3-L5 spaces. A work accident 3/13/14 revealed that the L5-S1 fusion had failed. My first surgeon could no longer help me because he quit accepting my insurance. I found another neurosurgeon and had an ALIF L5-S1 on 9/16/14. I woke up with numbness in my right great toe that wasn't there before surgery. I also had complications with nerves being "disturbed" specific to an anterior approach. Urinary symptoms have resolved, sexual symptoms have not. Symptoms in my right leg worsened and I agreed to what turned out to be a midline PLIF L5-S1 and removal of (loose) hardware L3-L5 that was performed 12/18/14. Recovery was slow and included a necrosis in my incision that eventually healed. I've always dealt with depression, but starting with the recommendation for a third surgery, (11/12/14), I became severely depressed and suicidal (ideation and plan, but no attempts) I started seeing a psychiatrist and began taking Cymbalta, Welbutrin, and eventually Lexapro - titrating up to Cymbalta 120mg, Wellbutrin XL 300mg, and Lexapro 20mg. For pain I was taking Oxycodone, Meloxicam, and Neurontin. Not knowing my prognosis and knowing how long SSD can take, I filed for SSD on 1/24/15 with the help of a lawyer that actually is an advocacy group under the lawyer. NONE of my doctors were willing to fill out the disability determination paperwork which is only a residual function capacity. I was denied and now face the same circumstances because my PM Doctor won't
    fill it out for me. This happens to a lot of applicants. I've read that "shopping" for a doctor can be detrimental to a claim. Most people get denied, then denied again on the reconsideration appeal level, and a hearing is set up with an administrative law judge. I live in Texas, so it will all depend on who I get and how strong my "new" or continuing medical information is. I'm sorry you are going through the same situation with SSA...
    I've read some horror stories and some positive feedback. I hope it helps enough for me to get off the pain medication and eventually the antidepressants. I want my life back!

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    ALIF L5/S1 9/16/14
  • darby01darby01 Posts: 191
    edited 09/29/2015 - 5:08 PM
    I am 4 weeks post on for my SCS implant and am also still having pain at the surgical site(mainly the muscle that they moved) and a little soreness where the battery was implanted. My paddle migrated a little bit to the left in between surgery and two week follow up and my surgeon said this can be keeping the pain around and he may need to go in and move the leads if everything doesn't stop. I'm still getting great coverage so I'm praying it stays that way. I am also having disability issues. I was denied about a year ago and immediately got a lawyer. As of last month they were finally reviewing my case. My pain mgmt Doc doesn't want to fill out the paperwork and not sure about surgeon. My pain level is still at about a 4 and I can't lift or sit for too long as well. Even just sitting at my computer for 5 minutes my back gets sore, I get neck pain that causes headaches, and right hand goes numb. I'm hoping my surgeon or pcp will fill out the paperwork for me. Please fill us in if you have any luck with the pain and disability
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