I don't think I need to tell anyone how difficult it is to live in pain day in and day out.
The physical pain at times can consume everything we do
For those that are just beginning to experience chronic pain it can really turn your life inside and out.
And for those of us who have been living in chronic pain for 5,10,15,20 or more years , it still doesn't get easy.
But its the emotional side of living in pain that is so difficult. I started to write a list of actions that I think most of us can relate to
- You don't look sick, come on join us
- It will be a 3 hour drive and then a lot of standing and jumping, you will love it
- They have a double feature at the movie theater. Just think 5 straight hours of JAWS!
- All of us are getting together for a fun volleyball game, lets go
- Grandpa/Grandma , Mom/Dad, etc. Pick me up as I run into your arms in throw me into the air
- We are all going dancing tonight, put on your dancing shoes
- Oh, are you going to complain again
- I am tired of hearing you whine about your pain
- Forget the cane, thats only for old people
- Oh great, I have to do the shopping, cooking, cleaning, you dont do anything
- This is nice, another weekend and we cant go out because of you
- So, what are you going to do now, pop another pill
- I don't really think you have that much pain
- Get over it
I realized that this list could go on for pages and pages. I dont know if people are insenstive or that they just
don't understand. But I can tell you how many hours I know I felt really down and alone by comments made or
by actions others wanted to do.
I think this song by Peter Paul and Mary summarizes some of what we understand Here are just some of the words
Peter Paul and Mary said:
Don't laugh at me, don't call me names
Don't get your pleasure from my pain
In God's eyes we're all the same
Someday we'll all have perfect wings, don't laugh at me
The song : Dont laugh at me
Ron DiLauro Spine-Health System Administrator I am not a medical professional. I comment on personal experiences