I had my SCS implanted on 6/18/15. My experience with my permanent SCS placement has been quite different than with my trial which was stellar. I also PNFS as well.
For my trial I had a percutaneous lead placed in my neck, specifically to the top of C2 and sitting to the left of midline. My diagnosis is RSD/CRPS of my LEFT upper extremity, but when I have flare-ups it spreads to the right arm as well.
For my permanent SCS placement a 16 electrode paddle lead was placed (with laminectomy) instead of using the percutaneous lead. On post-op X-rays the paddle lead actually sits to the right of midline.
It took several weeks to months and reprogramming attempts to finally get the stimulation down my left arm, but I can only feel it if my head is turned 90 degrees to the left. I feel nothing with my head in neutral or straight position and I always feel the stim in my right arm.
I'm now being told that paddle leads are NOT supposed to be used in necks because the risk of paralysis is too great, so revision and even removal is now out of the question for me.
Is there anyone else out there who have paddle leads in their necks? Will the stimulation spread over or get any better to my left arm if the lead was placed on the incorrect side of my spine?
Trying to make lemonade out of lemons over here.......
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One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.
So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.
Here are some questions that you should answer:
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Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.Specific comments :Personal Opinion, not medical advice :
--- Ron DiLauro, Spine-Health System Moderator : 09/23/15 10:04 est