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SCS implanted - paddle lead in cervical spine

Paige2700PPaige2700 Posts: 2
edited 09/23/2015 - 4:04 AM in Spinal Cord Stimulation
I had my SCS implanted on 6/18/15. My experience with my permanent SCS placement has been quite different than with my trial which was stellar. I also PNFS as well.
For my trial I had a percutaneous lead placed in my neck, specifically to the top of C2 and sitting to the left of midline. My diagnosis is RSD/CRPS of my LEFT upper extremity, but when I have flare-ups it spreads to the right arm as well.
For my permanent SCS placement a 16 electrode paddle lead was placed (with laminectomy) instead of using the percutaneous lead. On post-op X-rays the paddle lead actually sits to the right of midline.
It took several weeks to months and reprogramming attempts to finally get the stimulation down my left arm, but I can only feel it if my head is turned 90 degrees to the left. I feel nothing with my head in neutral or straight position and I always feel the stim in my right arm.
I'm now being told that paddle leads are NOT supposed to be used in necks because the risk of paralysis is too great, so revision and even removal is now out of the question for me.
Is there anyone else out there who have paddle leads in their necks? Will the stimulation spread over or get any better to my left arm if the lead was placed on the incorrect side of my spine?
Trying to make lemonade out of lemons over here.......
Thank you in advance.

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  • I also have leads in my neck I have 2 leads one at C2 and one at C7 to try and cover my shoulder area. Mine is suppose to be in my right side but I do feel it in my left shoulder area. I also feel it more in my right hand then in my neck. If I also hold my head straight it feels like it quits, I have a Boston Specific implant and have been having problem with it not sitting right and it's implanted in my buttocks on the right side it feels like it's bulging out and on the left side of it feels like I'm being stabbed with a pin over and over. my surgery was 7-24-15. My 3 other surgeries were easier then this surgery that is for sure. I was asked by my pain specialist my pain level I said about a 8 again and 70% relief and he said you told my PA at last visit a 5 and you felt 90 % better and you look great I laughed and said make up on and short hair cut helps but it's how I feel on the inside!! Do you want my body for a hour? You'd give it back in one hour. I hope this helped.
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