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spinal myopathy and fibromyalgia symptoms

I have come across this multiple times and find it very interesting since my spinal cord injury brought all these strange symptoms into my life, this is from a study looking at myopathy:

There was no significant difference in initial clinical presentation or demographic characteristics between the patients treated by surgical decompression and those treated by non-surgical means. There was a striking and statistically significant improvement in all symptoms attributed to the fibromyalgia syndrome in the surgical patients but not in the non-surgical patients at 1 year following the treatment of cervical myelopathy (P < 0.018-0.001, Chi-square or Fisher’s exact test). At the 1 year follow-up, there was a statistically significant improvement in both physical and mental quality of life as measured by the SF-36 score for the surgical group as compared to the non-surgical group
Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.


  • Tomorrow I am scheduled for cervical spine surgery for stenosis and myopathy. I have severe compression of my spinal cord in the C3-C6 region and they will fuse 3 levels. I managed my symptoms with yoga and slow burn and PT for a year but my condition worsened and my spine is a "train wreck." In the last few weeks my symptoms have gotten worse. My arms and hands go numb. I drop things (oddly usually items that are light in weight). Now I am getting widespread pain and stiffness in my joints and my skin actually hurts to touch in different areas of my body. I have to wonder if I also have fibromyalgia. What are the tests for fibromyalgia? Does any existing research suggest these symptoms will get better once my spine is decompressed? Oddly, if I am up and moving I feel better all around. Things are at their worst when I am sitting down, like at work where I sit at a computer all day and scan old documents. (I am retiring on Oct 23 at age 55 so will not have to go back to a desk job!) Seems also like my symptoms got worse after stopping B12 and Aleve and Sage in preparation for surgery.
  • itsautonomicitsautonomic LouisianaPosts: 1,807
    There is a reason for the lighter weight stuff, it's called proprioception and light things don't register like heavy stuff does with your brain due to the nerve damage. I had same issue and this is what the doctors told me.
    From what I've read many fibromyalgia type symptoms resolve after getting cord compression fixed. There are several doctors that feel and are showing good results that before labeling a fibromyalgia diagnosis a neck MRI should be done and done in extension to rule out what they are calling positional cord compression. In there cases they are seeing very good results with treating the neck issues and in turn seen a resolution of fibromyalgia symptoms.
    Who knows the credibility of this, but I saw a fibromyalgia specialist once to rule out and he was a big believer in this. From a layman who is strictly using common sense and experience , I do know that many , many fibromyalgia cases start after some type of neck injury so I would think there has to be some truth in these doctors studies. I know for me neck injury with cord issues started all types of weird problems and horrible pain
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • This is exactly the term my surgeon used...positional. I could not understand why yoga made me feel great and sitting made all these symptoms flare up. I went on vacation in August...I hiked and swam and walked a lot...with NO problems unless I sat down for a period of time. Returning to work after vacation...sitting at my desk all day and doing repetitive scanning of documents...I was a complete physical mess. My arms and hands would go numb and one day I almost called my husband to come take me home. Then bad pain and skin sensitivities on my left side (which is where the doc said my worst symptoms would be). I have studied my MRI...at two levels the spinal cord is close to being closed off. I hope this surgery alleviates these disturbing symptoms!!! Thank you so much for sharing your experiences with me it has lessened my stress a lot!
  • Wouldn't that imply that doctors diagnose fibromyalgia if they cannot find anything else, whereas this sometimes is a "hidden" spinal cord compression that does not show on lying down MRI and / or EMG?
  • itsautonomicitsautonomic LouisianaPosts: 1,807
    Drs have diagnosed fibromyalgia for a variety of things that it actually turned out to be.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • I had surgery  in September of 2014 on c5/c6 because of a severe disc herniation.  I have damage to the spinal cord and the nerves at that point that has yet to go away. I have been having continuous pain and migraines. After a  year of tests and whatnot , I was diagnosed with fibromyalgia.  It has been a process of eliminating everything else. Fibromyalgia and spinal cord disfunction go hand in hand from what I have read.  The condition sucks but having a name for it makes me feel less like a hypochondriac 
    Tracie C
  • itsautonomicitsautonomic LouisianaPosts: 1,807
    Rtconant1, I had SCI and damage and recently was diagnosed with central pain syndrome( along with autonomic dysfunction ) from SCI and possible CRPS.  But I have seen two guys that wrote books on fibromyalgia and both said its not fibromyalgia prior to this diagnosis , and the PM/ Neuro that diagnosed central pain syndrome said its most certainly not fibromyalgia. A lot of the symptoms can be similar though. Is your pain body wide or just one side?
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • NLTNNLT Pacific Northwest of USAPosts: 19
    Wow, this conversation is fascinating. I am recovering from Lumbar decompression right now and one of the things I've realized is that some of what I thought were fibro symptoms (achy legs) were probably related to the pinched nerve in my back. And my fibro started after a bad fall down cement stairs. Among other things I badly sprained my neck.  
  • You are so right! I just watch videos online of a spinal surgeon talking about   this exact thing ... where spinal compressions are seen better when the head is tilted backward not flat!!! It was amazing to watch as he explained with video the difference is remarkable!!!  I had two compressions show laying flat, how many would show with head tilted back!!! This is new research .... try with all you can to get an MRI with head tilted backward!!!!! For all of those that had MRi's and didn't show compression!!!! 
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