Today is a wonderful day for me, I had the SCS trial procedure done yesterday. Although everything did not go totally smooth the current results are more than what I had anticipated.
My experience with procedure:
Doctor explained in detail about the prep for the procedure and that I needed to communicate with him during the lead insertion process.
I was laying on my stomach with a pillow under my head, chest and feet. He gave me time to adjust myself to a comfortable position cause he knew this was difficult position for me because of my size and the pain I was in.
The sedation made me groggy but I could fully understand what was going on and he explained every step from massaging my back, prep solutions applied and then details when he was inserting the leads.
He told me upfront to yell at him to stop at anytime if I experienced pain and he would numb me up some more. He gave me advanced notice every time he touched me and explained when he was applying pressure. He stopped immediately when I felt severe pain and numbed me up some more and gave me a minute to catch my breath.
He was really good at talking me through the pain and he felt so bad he had to numb me up several times because of the extra manipulation he had to do to get the leads in. He explained because of several factors, scar tissue, arthritic swelling and the formation of my spine caused the extra manipulation that wasn't an easy insertion.
I think it helped so much the way he talked me through each step he was doing it took away the anxiety. Then he told the Boston Scientific rep to turn me on...
Oh my- I was in tears because I had instant pain relief, no more knife in the tailbone or that hot spiked searing rod pain that shoots down the leg and into the foot! I have always had pain even through anesthetics and medication, this was such a cool feeling, very strange but cool.
The rep talked to me for a few minutes to make sure they were initially getting coverage for all my main sights of pain. Then they turned it off, not nice! LOL He then asked me what position I slept in so he could dress the incision and position the leads, cable and stimulator so it wouldn't bother me or pull while I slept.
Then after he helped me up he explained again the most important thing is to roll when getting up and down, etc. I then was taken back to the recovery room where I could sit up and was given liquids.
The rep then came in and worked with me to set up two programs which also can be combined to make a third program. The rep told me at that point she would be calling me everyday and adjustments or another program could be made at any time, whatever I needed.
When I got home and throughout the night most of the pain I felt was a harsh cramping from the lead insertion. (told this is normal) I was able to sleep for the first time since I can't remember.
So even though I am moving a little bit slower getting use to the stimulator I do not walk with a limp. This is only day two and I still have pain. This maybe an answer for me to lead a better quality of life.
If someone has questions or concerns regarding this procedure feel free to PM me and I'll help if I can. I still have quite a few more days with this adventure and need to see how my body reacts with this stimulator while I'm at work and doing other activities.
Thank you all for giving me good advice, encouragement and hope. I had doubts and anxiety about going through with this before I read some of these forums. I appreciate all your help.
So far So Gooood.
he= very patient, knowledgeable and compassionate doctor.