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New to Group

sheilajossheilajo Posts: 1
edited 10/07/2015 - 9:10 PM in New Member Introductions
Hi, I'm a 53 year old woman. I've had 3 lower back surgeries in the last 9 months. The last one was September 17th,2015. My neurosurgeon did a spinal fusion. I also have Lupus and have lived with pain most of my life. I go to Pain Management and the medication does help but I still have my good days and bad days. I needed to find a place where people understood me. My husband is very understanding but I can tell that even he has his days of frustration. I also have family and friends that think I'm just lazy, like to take pills , use my illness as a excuse. In fact my own 2 son's have recently stopped talking to me. They said I'm not even trying to get better and I have a drug problem. I have degenerative disc disease and spinal stenosis. They don't understand I'm not going to get better and I need my medication just to make my life bearable. I'm also being treated for depression. I lost my job in May. My surgeon said for me to apply for disability. I have and now I'm waiting for their decision. So, that's my story and I look forward to meeting everyone

Welcome to Spine-Health

One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.

Here are some questions that you should answer:

  • - When did this first start?

    . Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)

  • . Which doctor did you start with? Ie Primary Care Physician
    . Who are you currently seeing?
- What Conservative treatments have you had? Which ones?

  • . Physical Therapy
    . Ultrasound / Tens unit
    . Spinal Injections
    . Acupuncture
    . Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)

  • . Summarize the results, please do not post all details, we cannot analyze them
    . How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)

  • . Name of Medication
    . How long have you been using this?
    . Results
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ There you will find much information that will

  • - Help you better utilize the Spine-Health system
    - Provide pointers on how to make your threads / posts
    - Tips on how to create your avatar (your picture), posting images, etc
    - General pieces of valuable information

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide

  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
    - Medical advice of any kind
    - Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : 10/07/15 21:11est



  • I am so sorry that your family are beeing so unsympathetic. No one wants to be missing out on life and to live in pain. Let alone to plough through the fog of pain relief. I am just so sorry that you are going through all of this without the support you so desperately need. Hugs.
  • I think family can really be the biggest problem sometimes!!! My mum thinks it's all in my head or because I'm fat - I'm slightly overweight- yet my sister, whom I love so much, treats me like a cripple! Somewhere in the middle would be lovely!! I have 3 children and the thought of them treating me the way you have been treated breaks my heart.
    Can you have a family sit down?
    Write them a letter maybe?
    How come you had 3 operations in such quick succession? You have really been put through it but you've come to the right place!!!
    All the best
    Kirsti x
  • jra191jjra191 Posts: 11
    edited 10/08/2015 - 9:57 PM
    Hi Sheila, I just joined too. So new this post still has to be approved :) WOW that was very honest of you just to post out there what your family thinks of you. I still am fortunate enough I can work and hope to for 15 more years and start to cash in my 401k LoL. Naw seriously I hope we both stick around here for awhile and hugs too. See you around :)
    Rick Anderson. I live in middle Tennessee. I'm a former pro motocrosser, raced a car on dirt tracks for 5 years, played tennis in high school, now raising 2 kids and enjoying life to the best of my ability :)
  • SavageSavage United StatesPosts: 5,435
    edited 10/08/2015 - 10:21 PM
    Welcome to Spine-Health
    Please click on link for helpful information.,
    Spine-Health Moderator
    Please read my medical history at: Medical History

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