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Out of options?

TobermomTTobermom Posts: 4
edited 10/15/2015 - 9:01 PM in Sacroiliac (SI) Joint Problems
I am a 30 year old female.
I love hiking kayaking camping.
I have always loved to stay active and be outdoors. i have not even owned a television since 2008 because, with all the other awesome stuff to do who needs a t.v.?
I have always been very social and a bit of a clown. I am a hard worker and work at a job that is extremely physical. Sometimes, every day is a workout.
I have a problem I would like some advice on, if anyone has the time.
I was recently diagnosed with degenerative joint disease of both SI joints I have spent much time in a great deal of pain. I went to the ER for back pain, where I declined pain medication. I was then put on 800mg ibuprofen and 20my of prednisone. I developed peptic ulcer disease. I cannot take NSAIDS at all. My whole upper GI tract was ulcerated from distal esophagus to duodenum.
I have not been able to enjoy any of my favorite activities at all, the entire summer. Even keeping my home clean and sometimes self care can be very challenging. Work is torture.
For the past few months I have been trying to find some relief from the constant pain. The tissue over the joints is always hot and very sore. The joints make gritty sounds every time I change position. I have tried physical therapy (pain was worse), chiropractors (work for the day of the visit), lidocaine patches (useless) biofreeze (feels nice but not a solution) and ice and heat.
Over the past year I have watched myself turn into a sedentary introvert. I am depressed and misserable all the time. My entire personality has changed. All because of pain.
My Dr. will not give me any other pain medication because she is afraid of side effects (addiction). I have no drug abuse history and no criminal record of any kind. She also, made a comment about my 80 year old Grandmother (another patient of hers) being on strong narcotic pain meds. She said, "You don't want to end up like your Grandmother."
I thought that to be a very odd, and unprofessional statement for her to make.

My question is, what can I do for pain control now? Wh as t other options are out there?


  • LizLiz Posts: 7,832
    edited 10/15/2015 - 9:02 PM
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    Spinal stenosis since 1995
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  • SavageSavage United StatesPosts: 5,459
    Is it your primary doctor prescribing pain relief?
    Or are you seeing pain management? Spine specialist?

    I agree, I think doctor was a little too familiar when comparing you to your grandmother.
    That wouldn't have set well with me.
    Apples and oranges..if nothing else, due to age.
    And there is still expecteted confidentiality and to not be talked about even among family members.

    I hope your GI tract has healed!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • No doctor is prescribing pain relief other than the modalities listed (physical therapy etc.).
    That's why I am so painful all the time. I'm just kinda toughing it out. I see just my primary Dr. and gastroenterogist. I have been referred to a rheumatologist, but have not yet heard back for an appoimtment.
    My GI TRACT is significantly better but due to erosion in my esophagus and stomach my gastroenterogist wants me to avoid NSAIDS.
    Also, my SI DJD was diagnosed via radiograph ordered by GI Dr. because PCP seemed to think pain was all in my head and refused to take any action.
    Radiograph shows sclerosis and bony eburnation. Also, signs of cronic sacroillitis. This is a problem I have dealt with for a long time with no diagnosis. Dr. kept telling me it was soft tissue. I have had low back pain since 2005, it just became markedly worse over this last year.
  • A little additional info . . .
    I went to PT for months. I was told that my upper back showed great increase in strength, while my lower back showed no increase in strength at all. PT told me he couldn't do any more with me until I got back pain under control . . . But, Dr. will not assist with that. I just dont know what to do anymore . . .
    I feel like disability is my only option at this point, as I cannot keep working at my job with such pain. I have always been a very active and productive person. This is ruining me.
  • dilaurodilauro ConnecticutPosts: 9,856
    Disability should be considered the last avenue to take.

    For some people, however, disability is their easiest option.

    For starters take a look at The Blend

    Since, I have been on so many medications over the past 30 years, I have all sorts of stomach related issues.

    Today, I deal with the aftermath of all my spinal surgeries, the more difficult one is the increasing stenosis. There is not much I can do for that except additional surgeries, which at this point in my life, I am not interested in. The bigger problem is the advancing arthritis. I was fortunate to have both my shoulders and hips totally replaced, but my bone scan and x-rays show that my knees are next.

    For that, I like to use some natural products. I do not want to expand on that here, but there is alot of discussions/articles about this on
    Arthritis-Health and on Facebook Facebook Arthritis-Health

    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • I have tried many of the things on the list, I did not list eveything I had tried (my fault).
    Of course I do not want to go on disability. i have always been unstopable.
    But, I have nothing at all, of any kind on board for pain control no muscle relaxers, no NSAIDS, no opiods . . . Nothing. My Dr. refused to give me anything because of my Grandmother.
    My physical therapist has tried traction, strengthening, SI belts, massage. All with not even an anti inflammatory.
    I am a vet tech. I spend my day on my feet and crawling around on the floor. Restraining big dogs, being pulled on, jumped on and knocked over. The job is very physical and is known for destroying backs and knees.
    I have no funds to go to school for anything else and it is becoming clear to me that I can't do this job for much longer. But, I have invested the past 13 years inthis career choice and am at a total loss.
    I feel it would be infinitely helpful if my Dr. would give me a little more assistance in keeping pain tolerable.
    There are a few things on the list that I have not tried and most certainly am interested in though.
  • Hi:
    I am just recently struggling with increasing pain, after having it on and off for 10 years. I have had to go part-time and love my job. What has worked for me lately is mindful meditation. It lets you get control of your thoughts and not let the pain control you. Through practice, I hope to get better at it, but so far, it is helping somewhat. Also, if you can get to a whirlpool/hot tub, it took the pressure off my spine. Even if it is only temporary, it helps get through the day. It is also good to get out with people. I go to a community centre so it is not expensive. I too did not find physio helpful, but maybe a different physio would have the answer. I am going to try another clinic. Also, I am going to try tai chi. It is supposed to be very beneficial for pain. I hope you find some relief.
  • Perhaps time for a new PCP? If possible, I might look into that option.

    Have you tried (and is it viable) SI injections? Or nerve ablations?

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