Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Help for someone without options

XenaBardXXenaBard Posts: 1
edited 10/19/2015 - 4:21 AM in Chronic Pain
I'm in a tough place. I've been dealing with serious spinal problems for more than a decade. I've been treated with a Fentanyl patch (100mcg) as well as Methadone for breakthrough. I've never had my patch dose adjusted, and I cut back on my break through meds on my own. Actually, I was allowed to take up to 6 MSIR 30 mg tabs per day, but I stopped them because I didn't like the side effects. I should also mention here that NSAIDS caused a near fatal hemorrhage, so they are off limits for me. Anyway, we looked into an alternative to the MSIR, and my provider put me on Methadone for breakthrough since my insurance would not cover anything else.

I was able to take three Methadone tabs per day, but I could go a week or more without taking any. In the summer, I have less pain. The winter can be very hard because cold weather causes misery. This past summer, my long term provider was replaced (without warning) with an MD who is extremely conservative. Before even setting eyes on me, she decided to stop my breakthrough meds. (All of her patients got their meds cut significantly. I was told outright they wanted to weed out people who "didn't belong there." That scared the heck out of me, I'll tell you).

I declined having the Methadone weaned since I don't take it all that often. So she stopped it cold. No problem. But a few weeks after I had a miserable couple of days. Next time I saw her, I asked her how we would manage break through pain. Her answer: "You shouldn't have any with Fentanyl." (Wow. So much for individual patient care). And then came the implied threat: "If you aren't getting the bang for the buck "we" expect, we'll just stop the Fentanyl altogether."

This is putting me in a terrible position. I never take meds I'm not allowed to. I never have cheated, nor have I taken more medication than I should. Fentanyl has been a miracle for me. Before the Fentanyl, I was put on long acting morphine. Even on that, I could not get out of bed to get to the bathroom without help. Thanks to the Fentanyl, I'm able to ambulate pretty independently, mostly with a cane, sometimes with a walker. (I'm only in my 50's, so I resist using a walker). My Home Health Care worker who comes in every weekday to help me with cooking, shopping, the standard activities of daily living. Thanks to the Fentanyl, the weight I gained after I became ill literally fell off. (At 5'6", i'm about 115 pounds).

I know the pain management people are feeling political pressure. I get that. I understand they don't want to risk their licenses to treat pain issues. But this leaves me with no options. Am I supposed to lie when my pain level shoots up? If she takes away the Fentanyl, I literally have no quality of life left. Right now, I'm facing another New England winter. I have no relatives alive, and no support system. My partner left me when I got so sick. I can't afford a car, so my chance of putting together a social network are between zero and zip.

Oddly, I'm not depressed. (I asked for Cymbalta years ago to help with my pain management and that really seems to stave off gloomy feelings). However, I am realistic. The one constant in my life is: pain.

Honestly, I never thought I'd be left without support. Or pain control. Since I don't cheat and never have asked for increased med dosages, I assumed (wrongly, I see now) that if I needed help to control my pain, it would be available to me. They are really telling us we are on our own. What choice do we have beyond checking out if it gets to be too much?
Morality is doing what is right regardless of what you are told. Religion is doing what you are told regardless of what is right.


  • LizLiz Posts: 7,832
    edited 10/19/2015 - 4:21 AM
    Please take the time to read this post and refer to it when you have questions

    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and growing.
    Here are just some of the highlights that are available as tabs on the main Spine-Health menu bar

    Spine-Health Main Menu Tabs

    Conditions Detailed medical libraries of articles and videos that address almost every spinal condition.
    Treatment List of treatments to the conditions identified by Spine-Health.
    Wellness Section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.
    Medical Articles
    Pain Forums These are the forums you will be using
    Find A Doctor This provides with a method to search for doctors in various locations.
    Videos Index to all Spine-Health Videos

    As a bonus, Spine-Health provides these patient forums. Here you can meet thousands of people who understand and can relate to your situation. You will soon become part of the Spiney family[/u] who provide comfort and the advantages of a support system. You are now part of this family that is approximately 27,00 international members and growing daily.


    - It is very important to understand the Forum Rules to make sure all of your posts[u] do not violate any of the rules.[/u]

    - All new members must read our FAQ in order to understand the layout of the forums, how to navigate through the forums, helpful terms, how to make effective threads and posts, plus a link index to many of the important medical forums and key medical articles on Spine-Health Forum FAQ

    I am positive any member, new or old will find this Chroinc Pain - Step by Step thread very valuable.

    Here are some links that all new members need to review to create effective threads and more

    Read before you post
    More Info Tips for Newcomers
    Understanding the rules

    All of this will help make your threads better and improve the times and quality of responses you will receive.

    You can also find Spine-Health on these Social Networks

    Facebook www.facebook.com/spinehealth
    Pinterest http://pinterest.com/spinehealth/boards/
    Twitter https://twitter.com/SpineHealth

    If you have any questions or need assistance, you can use the private message facility to[u] contact any one of the Spine-Health Moderators




    Also working with us very closely is Allison Walsh from the Spine-Health company


    Liz, Spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • dilaurodilauro ConnecticutPosts: 9,865
    Everything you are talking about is centered around pain medications. There is so much more to a total pain control management plan.
    Everyone always has options, you just need to explore them , and perhaps several times.

    Take a look at The Blend This concept helps thousands of people manage their pain levels.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com

  • Youe part of a very large, very loving and giving community now.
    Each and every one has, or will walk in your,shoes.
    Your no longer at this alone.
    Give the little Spiney Village on the web a chance.
    Keep that chin up!
    William Garza
    Spine-Health Mod

    Welcome to Spine-Health

Sign In or Register to comment.