Has anyone experienced anything like this? For the last three months I've had a travelling pain syndrome that doesn't fit any of the usual categories. Every few days I have what feel like excruciating muscle spasms (but I think it is sensory nerve pain, not actual spasms) in one area of my body, then a few days off before the next one hits, either in the same place or a new one. Started with individual arm muscles, one at a time, first one arm, then the other; then "tooth" pain, jaw pain, "tendonitis"-like pain in forearms, shoulder pain; then it started migrating down my back - at first upper chest pain, front and back (heart checked out OK), then epigastric pain, front and back (gastroenterologist said it's not GERD), now it's up to lower thoracic lower ribs and diaphragm-stomach.
When it hits I'm debilitated in agony for an hour or two of waves of pain, which then slowly ease and I usually have a few days of respite. Along with this there are strange lines of itchy red bumps, not typical shingles, both sides and in one segment at a time. Some of these have appeared where my osteopath has been working, but others just come up on their own. I've also had strange swollen lips a few times during this. Five or six doctors later, no wiser, but one suggests it may be either a human herpes virus and/or autoimmune channelopathy so that my sensory neurones over-react (blood tests done but results pending) - I'm on Mg and phosphatidylserine and lysine, but so far it hasn't touched the sides, neither does panadol, Valtrex, bicarb, Ibergast, etc. I'm posting in case this rings any bells with anyone, since it's a complete mystery to me and doctors!
There are no medical professionals on the forum side of this site. Therefore everything you read is based on the personal experiences and/or research done by the individual member. Comments should never be taken as pure medical facts. You need to discuss this with your doctor. They are the only ones that can provide you with detailed information about you, the patient.