Please note this is my first time entering a post - I have been reading and following this forum since April 2015; I am so discouraged I am going for a f/u appt. with neurosurgeon tomorrow - she ordered a new MRI but over the phone said it looks completely normal and no recommendation for treatment or medication as far as she can see, but still come in for a f/u appt. (of course) I was tempted to cancel - I have been reaching out for help consistently since 3-4 months out - finally gave up on her and went to my PCP - she was willing to help me for a few more months, thinking I just needed a little more time to get over the hump. Well, the hump has come and gone, I asked for a referral to PM from my PCP and it was given, however I have had to jump through hoops to first go through my surgeon and an updated MRI before they will offer me any treatment. I am not just asking for drugs - I have requested a steroid injection - too soon; I have requested to try nerve pain meds - not conclusive; my insurance won't cover acupuncture so I am willing to try too but can't afford more bills from this surgery/year. I have such anxiety about my appt. I am so convinced they think I am just coming for the meds and I'm not I am in real pain - I want my life back - I have to cancel things I want to do, work short days because I can't sit any longer, I have trouble sleeping, I come home crying sometimes from the pain - I am a slave to ice packs, heating pad, icy hot patched, tylenol and advil (way more than recommended) and still miserable. I feel so defeated and so abandoned, and yet when I read this blog I know I am not alone in my situation. Why do they have to make you feel so terrible, like you are crazy or shouldn't feel any pain anymore at this point? I only went to the initial consult for PM and right away was asked "so you want us to take over your meds is that what you want??? To come in and be drug tested and monitored on a regular basis, is that what you are asking??? " Seriously?!? I hadn't even mentioned that - I only mentioned treatment options, perhaps nerve pain meds and possibly more steroid or trigger point injections - why so accusatory?!? The pain medication works - why wouldn't I want to continue until another method proves more effective or the pain goes away? I am not abusing it, I have only tried to work with them to reduce or "wean" from the medication - how can you wean if you are still in pain?!?!?!? I just needed to finally vent - I am so discouraged - I'm sure I will hear nothing new tomorrow, I just have to stay strong, address my issues, ask for help. ****************************************************************************************************** Welcome to Spine-Health
One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.
So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.
Here are some questions that you should answer:
- When did this first start?
. Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
. Which doctor did you start with? Ie Primary Care Physician
. Who are you currently seeing?
- What Conservative treatments have you had? Which ones?
. Physical Therapy
. Ultrasound / Tens unit
. Spinal Injections
. Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
. Summarize the results, please do not post all details, we cannot analyze them
. How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)
. Name of Medication
. How long have you been using this?
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?
Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.
Please take a look at our forum rules: Forum Rules
I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ
There you will find much information that will
- Help you better utilize the Spine-Health system
- Provide pointers on how to make your threads / posts
- Tips on how to create your avatar (your picture), posting images, etc
- General pieces of valuable information
Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide
- Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
- Medical advice of any kind
- Recommendations in terms of Medications, Treatments, Exercises, etc
What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.
It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have areI’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?
Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.Specific comments :Personal Opinion, not medical advice :
--- Ron DiLauro, Spine-Health System Moderator : 10/26/15 20:40est