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legs feeling hot/restless legs at night

Ive got this problem where i cant keep my legs still at night and feel very warm,pulling pain ,long standing spine/sciatica afttr surgery 4 years ago and have gone for further tests,emg neurological studies next,can anyone help with these symptoms as its affecting sleep terribly,ive tryed tens and have morphine patches ,cocodamol and baclofen,also have lyrica but hesitant to add as they zombify my too much but might have to ! Thanks


  • SavageSavage United StatesPosts: 5,476
    edited 10/29/2015 - 2:24 AM
    I had a sleep study. I was surprised doctor saw anything, as I didn't think I slept well during testing.
    But he was able to and able to prescribe specific medication to help me.

    I know going without sleep can be crazy making!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • I'm the same 7 months post l4/ 5 fusion cage my legs burn at night , restless can't sleep, I have terrible tailbone pain pressure like I'm in stage 3 labour, lyrica endep norgesic codein nothing takes the pain away,, has anyone here had ketamine infusions??
    Imdesperate worried and scared of my future God bless all of yous going through this nightmare.
  • Since I put the post up,I couldnt wait to see pain management again so talked to GP who gave me amitriptyline tabs,its the first time i slept for nearly a week and Im on a heafty dose of other meds so I would definitely recommend them,as for the ketomin,I do know someone that has a ketomin/morphine mix from pain management but that person is bed ridden and its in a pump,its the only thing to help this person at this stage,but not easily prescribed.
  • I have just had a 10 day Ketamine Infusion. I was in the hospital and the Ketamine was delivered at a rate of 200mg per 24 hours for the 10 days. The purpose of the infusion is to reset the opiate receptors in the brain thus reducing the opiate tolerance level. This is much better than constantly increasing opiate doses when the body becomes too used to the meds and they no longer work.

    They put the 200mg of Ketamine, along with 75mg of Clonadine into a pump which delivers the meds via a line placed into the fat in the stomach. The worst part of the whole procedure is that every 24 hours they have to reinsert the line in a different place. I had this done in a hospital that specialises in physical rehabilitation so while I was there I also had a fairly intense rehab schedule that included at least 2 physical therapy sessions per day plus relaxation sessions.

    Apparently some people can't tolerate the Ketamine so you are monitored very closely. For some, the procedure doesn't give them what they need. For others, it is so helpful that they have them once every 6 months or so rather than having their everyday meds increased.

    For me - I chose, while I was on the Ketamine, to cease my regular dose of Fentanyl and try changing to another med. I am glad that I did it then because I was under constant medical supervision when the withdrawals kicked in.

    Has it reset my tolerance levels? I can't really say. If I was still on the same medication then I would be able to give an honest comparison of pain control before and after but the change in meds means that I'm not sure. Others who were in the hospital undergoing the same treatment swear by it.
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