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Spinal Cord Stimulator for Burning Pain

joeyphoenix21jjoeyphoenix21 Posts: 2
edited 11/02/2015 - 10:54 AM in Chronic Pain
Hi there,

Was wondering if anyone here has had a spinal cord stimulator implanted.

I have severe burning neuropathy in my legs and feet. I also suffer from thermal allodynia (temperature changes cause pain) and tactile allodynia (pain from clothing, bedsheets). The cause of my neuropathy is lyme disease. My pain levels average between 6-8. I am unable to tolerate any clothing on my legs at all.

Does anyone out there have similar symptoms and get relief from a stimulator??

I have tried many drugs for this condition including antidepressants, anticonvulsants, narcotic pain meds, topical medications, etc. While some drugs have offered relief, the side effects are unbearable. So now I am at a point where the stimulator seems like my only option.

So, if you have a spinal cord stimulator, I would love to hear of any success you have had with it. Sorry, but I would rather not get messages from people who did not get relief or any horror stories. I am looking for some encouragement as I feel very hopeless.

Thank you so much for reading :)

If you type spinal cord stimulator into search at top right hand side of the page..(last icon) you will find many threads and also articles covering this topic
Liz, spine-house Moderator
Lyme/medication induced neuropathy
Currently treating with IVIG weekly
Have tried all aspects of pain management
Next step is spinal cord stimulator


  • LizLiz Posts: 7,832
    edited 11/01/2015 - 8:46 PM
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    Liz, Spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • I had a stim implanted just over 2 years ago. It was a difficult decision to make but I decided to give it a go.

    If you decide it's worth a try, the first thing that will happen will be a trial. This is where they place temporary leads in your spine and test out whether or not the stim gives you any relief. If it does then you can go ahead and have it permanently implanted.

    I was hoping that the stim would be the "cure all" and that I could be free of medication. What I now know is that the stim is just one of a group of tools that help. I am glad I have it. I have it running at a low level 24/7 which helps. When the pain gets bad I turn the stim up and get some temporary relief until the meds kick in. The down side for me is that the when I turn the stim up my brain looses contact with my legs and so I have difficulty in walking. It also sets off a burning in my feet if I have it turned up for too long. Even so - I am glad to have this in my arsenal. Without it I don't think I would get through the breakthrough pain.

    Talk to your doc about how he thinks it will help. Discuss the different ways it can be implanted and which way might be better for you. Talk about having a trial to see if it might help with your condition.

  • Thanks Liz!!

    I'm happy you have found relief with your stimulator Cheryl! Thanks so much for the reply :)
    Lyme/medication induced neuropathy
    Currently treating with IVIG weekly
    Have tried all aspects of pain management
    Next step is spinal cord stimulator
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