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Pulmonary distress after fusion surgery

mra1385mmra1385 Posts: 1
edited 11/01/2015 - 9:04 PM in Scoliosis
I had a 10 hour fusion back surgery about 19 years ago (when I was 11) where rods were inserted into my back. This was to correct a very severe curve of over 90 degrees and was affecting my breathing. Since the surgery the curve has been fixed to about 50 or 60 degrees and my breathing was ok but still got shortness of breath during exertion. I also had follow up visits with my orthopedic surgeon who told me that my back was completely healed from the surgery. Then about 13 yrs following the surgery I had a normal uncomplicated pregnancy which ended with a scheduled c-section. My breathing was not affected. However, during the 2nd pregnancy about 2 1/2 yrs later, My breathing was severely restricted and had to be put on oxygen, and still on the oxygen with no time frame on how long I will be on it. My doctors tell me that my breathing is being compromised because of my scoliosis which I thought the surgery was to supposed to correct. My breathing is so restricted that I have severe restrictive lung disease and pulmonary hypertension. I actually just found out that my left lung is being compressed due to my distorted chest wall to due to the scolisosis. I even went to another orthopedic surgeon about 2 yrs ago (because of my breathing problems) who said that my back hasn't changed in 10 yrs and there is nothing else to do do for my back. So my question is has anyone had surgery and still have their breathing so restricted and compromised with no way to fix it? I would love to be able to get off the oxygen someday. I'm only 30 yrs old and want to see my two young children grow up and want to see grandchildren too.


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