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Seeking suggestions for 13 month post op ACDF.

NetteyNNettey Posts: 2
edited 11/09/2015 - 8:22 PM in Neck Pain: Cervical
Hi! My name is Jeanette and I had ACDF surgery on October 1st, 2014. I'm now 13 months post op. My doctor said my fusion has healed and healed well. I have a titanium plate in my c6-c7 with four screws. I want to add that I am only 27 years old. My neurosurgeon had given me two refills for pain medicine post op. Here I am now with chronic pain that shoots down my shoulder blades into my arms and stops around my elbow. It is most noticeable in my right arm, sometimes my left. When I turn my head, I can still hear crunching and crackling. When I brought up the pain issue and whatnot with the surgeon, he just seemed to ignore my plea. They told me that it wasn't pain, but muscle spasms. They refused to give me muscle relaxers, so I get them through my primary. I started with soma, that didn't help. Now I'm on methocarbamol, this too, does nothing. My surgeon signed off on my case at my final follow up in August, and told me to call if the pain was worse. He also mentioned that I had degenerative disc disease. I'm still working, though it is becoming a bit harder for me as time goes by. I sit in a booth at the parking lot at the airport. Opening and closing the windows and doors along with reaching out to customers is quite painful. I apologize for jumping around with different issues, but I haven't had much sleep. I can't get comfortable, and when I do, I wake up with a pounding headache. The doctor basically ignored this, too, and said that it's just a migraine. I've had headache problems before but nothing this bad to where I have to constantly have otc migraine medicine on me. I know I'm not alone here. I should also mention that I have arthritis in my left knee and I've had an arthroscopy on my right knee that I hurt at work, the doctor telling me it's patellofemoral pain syndrome and bursitis. The reason I add this is because I've seen a few people post about having RA. I don't believe that I have that, but who knows. So, I deal with pain from my knee and my neck and shoulders on a daily basis. It's almost too much to handle sometimes. I'm afraid to ask my primary for anything for pain. I live in Buffalo, NY, and there's a lot of abuse and addiction around here. I know it's everywhere, but most regular doctors around here are afraid of giving pain medication. I don't want to be seen as a seeker, because I'm really not. I'm just so tired of this constant pain. Any sort of help or recommendations would be absolutely wonderful. I looked through my provider directory for pain management doctors, but none are accepting new patients. As I'm writing this, my right arm is really hurting. Thanks for reading and thank you for any sort of help! I appreciate it.

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  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    Liz, Spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • LauralauraLLauralaura Posts: 27
    edited 11/10/2015 - 9:57 PM
    Hi Nettie, so sorry to hear where you are now.
    I would get updated exrays and mri to look at disks above and below where your fusion was done. DDD is what it is and you are having neurological symptoms with the arm pain. Maybe you should see an orthopedist who specialises in neck surgery, so that you can get updated exrays and mri ordered if your neurosurgeon won't do it. They can be compared and when taken ask the radiologist to compare them to the previous ones, so they know what has changed. Good luck. I can relate to what you are going through.
  • Thanks for the advice LauraLaura :) I am still hesitant to call my primary. I think I'll finally do it today. I just can't handle it anymore.
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