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Hello - I am very happy to have found this forum. I look forward to gaining info as well as contribu

Jenn1ferJJenn1fer Posts: 2
edited 11/12/2015 - 7:14 PM in New Member Introductions
I have been on this wheel of what dr feels like working today for the last 9 years approximatley. I am only 37 today but this all began back when I was 28. No one took me seriously because I didn't cry or nag, but felt led on a path that would eventually get me where I needed to be. Guess not, now I know but I am afraid I will only have a few more years left of easy mobility at this point. Really sux, I want to hold someone accountable for letting this happen... but I don't have the energy or heart to really put effort into that. Maybe I can look into it later.
Well at first they found a little arthritis and fibromyalgia, now I have really bad joint pain in both knees and ankles, that causes cramping through my leg muscels and on a bad day the pain lingers in my left hip. Last night it felt like i had a giant bruise on my hip - it was that tender to touch. I knew I was in trouble because I just came off a 3-4 week constant pain cycle. I call them cycles because they seem to repeat then get longer. Scariest thing is that this cycle only gave me 3 good days and those were not perfect just only about 15% pain all over. Anyhoo I knew I was in trouble because when the lack of pain stopped and started to increase I was hoping and praying it would not start already but it did. I tried to get comfortable last night but I could not rest my neck well enough to not feel it in my neck.. its okay I took a xanex after work so i just waited to fall asleep.
So well, from my hip up, I experience loss of range in my lower back. Its like I am locked up like legos and I can't turn side to side without it feeling like I am tearing my skin and trying to bend the bone and thats just hardly turning. Its not full blown yet mind you this is just day 2 we shall call it and if it lasts the full 3 - 4 weeks - i am absolutely terrified of how this will feel in about 10 days. So my lower back is hurting today - I have stretched, woke up early - drank water, ate breakfast, was as slow and careful as can be getting ready for work. Oh, my neck got worse over night. I had a spur there a few years ago - thats when they dx me with arthritis. by the way by knees keep clicking and my neck clicks with a simple deep breath, from my neck - there seems to be strings going out to my shoulder blades the down my shoulders to my hands - those are not painful yet. right now the extent is in my neck and down my back and it has already brought me to tears. I ran from my work desk to the bathroom before anyone could see me. yup i walked there. I am mobile but i feel like i have a giiant board tied to my body - so I can move normally just stiff, unless I want to have shootin pains and sharp stabbing i will walk carefully and embrace my weird gait, hehe. huh, my thigh muscel is starting to cramp up tho. so yeah in its worst the pain goes from my neck to my shoulders then my elbows and wrists and when its all flaired up - everything acts wacky from top to bottom at the same time. Thats when I will really load up on the meds and call in but I can't do that too much, I am just a single mom and work full time and these dr's said me in lots of cicles to the point where I don't know if I can stop it anymore! Oh and time like right now I am not able to think correctly either. As a tech support rep this can be particularly stressful. Maybe thats why my dr kept me on xanex but I would have by far preferred imaging, detection and modification over the amount of drugs I have consumed. At least they help me sleep through this at times so i don't want them to change it.
So at this point I am diagnosed with fibromyalgia, OA and Degenerative"bone"disease. They see a spur on my neck and three or four vertabrea in there are grinding together and then my lumber has 4-5 vertabrea that are grinding together and buldge and hurt.
My dr I finally found, who saw me consistantly (and may not have worked as hard for me as i would hope a professional would, but still recorded the progress of this pain for 2 years) up and closed his clinic - he put me back into the wind. So I went to [edit] dr [edit] I came in with notes and all my medicine and new vitamins ready to build a new relationship but he blew me of and I literally had to ask him to at least listen to my heart - if i could do something about that - [edit] ! He was looking down on me because I take hydrocodone at 10 mg/3x a day and take 1 mg xanex and I told him I herniated something in my neck about 8-9 days before. I know something happened because I got a click in my neck - sharp pain then a flood of cold fluid rush down my back from that area...; [edit] didn't even touch my neck or anything. I had begun to have the worst pain I have had yet in my knees and ankles at this time so he sent me to get imaging of those and lowered all my medicine and dismissed me - welcoming me to not come back if I was not satisfied! omg - i just wanna cry! If he knew so much why did my pharmacist have to warn me about the vitamins that I was still carrying around. that the calcium magnisuim combo with the vitamin c damages my liver. its been 2 months since I have had any dr to call my own. and these cycles are getting closer and closer to no relief in between - I am at a loss... i just don't know what to do anymore. oh and he thought sending me to a physiatrist would help SMH - - why can't anyone send me to a bone specialist - not pain management smh WHY!!!
A little background. I have never broken or sprained anything. I have had a very full life to know - I have moved homes 57 times by the time i was 27. I have had 2 children. I have no Std's my mama has dbd and I am starting to think my gramma did too - but she drank too much - I am starting to think she drank to self medicate. I have no drug addictions. I smoke - but am triying to quit - I noticed the hydro makes me smoke more. I have been on the same medicines for almost 8 years now. never uped the doses or got out of control. My family is wonderful. My kids are 17 and 19 and are very good people. My son didn't do so well in school but my daughter did amazing and the time is coming that I need to work really hard to help her through college. I am scared. first time ever lol
To the best of my knowledge and studies... I believe i am experiencing dual spinal stenosis (my own little name) thats when it happens in the neck and lumbar at the same time. also degenerative disease in my spine and somehow it seems to be spreading to my joints like the knees , ankles and shoulders. the fibromyalgia is getting severe. from typing this - my right shoulder is tender now. and I believe i may be holding both forms of Arthritis somehow. It always begins on the left then goes all over.
well the good thing is that I already had tomorrow scheduled off for an appoint for my daughter. I am going to a new hospital called [edit]. They have a great depart full of osteo specialties - God I hope that they can find out why this is happening.
I don't know why I have written so much - I guess I feel like the other users here may understand - doesn't seem to be many people who do unless I break down - which I refuse to do unless I can't help it!
All the best guys - I hope we all get well! xoxo
Your opinion and thought matters. All the best to you and yours today and always!
Jennifer N. Holly


  • ddalton71dddalton71 Posts: 8
    edited 11/12/2015 - 4:02 PM
    You are in my thoughts and prayers. Best wishes, David
  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    Liz, spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • SavageSavage United StatesPosts: 5,476
    Sorry for all you're going through.

    My primary doctor tried working with my pain about two years before referring me to pain management!
    That was best thing for me!

    With only primary's care, I was in and out of ER more than I care to remember.
    That is one goal achieved by my PM....staying out of ER thus far.

    Not sure if all the ER visits and then the required follow up with my primary, caused her to begin looking elsewhere for helping me.
    I think the paper trail I subsequently left, was showing the failure of diagnosis and any relief....and she may have needed to cover herself. I dunno!

    Since she's still my primary, I prefer to think she really cared, but was just stuck on pause.

    You mention that you are still working. Curious...what kind of hours do you put in? And what kind of physical stress, if any, is needed for your work?
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Jenn1ferJJenn1fer Posts: 2
    edited 11/19/2015 - 6:52 AM
    I do tech support for a very intergrated software company. I try to work 40 hours a week, but have not in sometime. Thank goodness I'm on top out of 400 others locally. The er is the worst. I was in so much pain last time I went he said I had arthritis and depression. Yea arthritis for almost seven years and I'm down more than I would be if i was well but no I was crying for help. Smh. I spent time in school for medical assisting and worked in a hospital for almost 4 years so I'm organizing my records so it's easier to read next pcp visit. I just posted something else quite interesting. Lmk what u think

    Please do not use abbreviated text talk!!
    Your opinion and thought matters. All the best to you and yours today and always!
    Jennifer N. Holly
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