Hi my name is Lorn from Australia. I was diagnosed with Rheumatoid and osteoarthritis 30 years ago. Have tried everything available however the condition just kept progressing becoming damaging joints throughout, even causing multiple bone breakages in my feet and ankles. Surgery was necessary to fuse both feet so I could at least walk but collapsed in one foot then back to remove hardware and replace with rods, screws and plates. No relief from pain. My spine and limbs are a complete disaster and soon to have yet another surgery tp prevent further slippage of the spine and spinal cord damage.
Some 28years ago I was also diagnosed with a rare congenital and progressive condition called Chiari1 Malformation with Syringomyelia.
Simply explained the cerebellar tonsils have herniated into the spinal column causing the restricted flow of the cerebrospinal fluid around the spinal cord and brain. The cerebrospinal fluid then fills the spinal cord cavity causing nerve damage and pain and drop attacks.
Neurosurgery several weeks after diagnosis reduced the syrinx to allow more time before progression caused quadriplegia, thank heavens for medical intervention and while still having residual problems with nerve damage and pain I'm happy to say I've had 28years on my feet.
Having this double whammy of arthritis and a congenital condition hasn't been easy pain wise however keeping a positive attitude that it's not going to beat me, a sense of humour, and the support of a wonderful husband life is mostly bearable.
My good wishes go out to everyone suffering from chronic pain and stay positive for some remarkable medical discovery, in the not too distant future, that will help you all.
Regards from Lorn