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Feedback on my 26 year old son

concerneddadcconcerneddad Posts: 2
edited 11/23/2015 - 2:47 AM in Chronic Pain
I'm worried about my 26 year old son and wanted to see if i can get feedback from anyone who may be familiar with his symptoms. My son left his job on medical leave over 2 years ago because he said the chronic severe discomfort (his wording) became too much to bear. he describes the discomfort as at times seeming to be alot of places but mostly seems to concentrate around his pelvis/hip. He has said he sometimes thinks his hip isn't hung right or something. He has had the most trouble i think in a sitting position, so he either stands or lays down. He says also he has had involuntary twitching of muscles in his arm and has had sudden loss of clear vision ( he can still see but everything seems to suddenly get more blurry). When he went on medical leave, he went to see a regular doctor who did an xray of his spine and told him it looked like he'd been in a wreck or something. My son had not been in a wreck though. The only traumas he can remember was once when he was in elementary or middle school, he fell a short distance out of a tree i think onto his bottom. I don't believe he ever went to a doctor about that. He also used to lift weights a fair amount and he says one time he was laying down bench pressing without a spotter and the weight came down on him. Again, I believe he didn't seem to be in so much pain that one would think there was something broken, so he didn't see a doctor. Anyway, the doctor said he was not a spine specialist and he might be mis-reading the x-rays. So, he went to a spine specialist and he's also been to a neurologist. Between the two he's had an MRI and a CT scan and both doctors said they found nothing remarkable. One said they saw a few minor annular tears and he just needed some physical therapy. The neurologist also said his arms were very weak. So he went to physical therapy (although he tells me he switched two or three times because he didn't like what they were doing, so maybe didn't do all he was supposed to or what he was supposed to). So, he got no relief from the physical therapy and quit. Eventually he lost his job and his medical insurance. So, I don't know what the problem could be or what he can do. He mostly lays on his back I think, says relaxing shoulders helps and just "letting go" of all muscle tensions. He only eats a variant of Soylent that he now makes himself (occasionally he'll eat sushi) and he thinks this dietary change has helped alot. He also added i think magnesium and some other natural supplements which he credits with helping. He does not use pain medication at all and doesn't like to use medications. When I go to see him, he usually has no trouble standing or alternately standing and sitting/laying for hours at a time, which just confuses me as he seems to not be in discomfort or pain, but I know, I've heard he could just be good a covering it up. It's just hard because now it's too the point where he has no income of his own and no insurance and.........just don't know how long any of his family , including me, can provide full support. Especially tough when I work around people everyday that have the more "obvious" disabilities, including some close friends with severe chronic pain, and they all work and earn a living. Anyway, I'd appreciate it if anyone can give any insights into what he might have and what can be done about it. I know many of you will probably want to only attack me for not being understanding of someone with chronic pain (I've read the letter to "normals" and the spoon theory), but I hope you'll spend more time trying to help me problem solve from the vast experience you guys have. I love my son and I want to see him healthy and happy and i understand he may never be completely healthy.

Welcome to Spine-Health

One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.

Here are some questions that you should answer:

  • - When did this first start?

    . Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)

  • . Which doctor did you start with? Ie Primary Care Physician
    . Who are you currently seeing?
- What Conservative treatments have you had? Which ones?

  • . Physical Therapy
    . Ultrasound / Tens unit
    . Spinal Injections
    . Acupuncture
    . Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)

  • . Summarize the results, please do not post all details, we cannot analyze them
    . How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)

  • . Name of Medication
    . How long have you been using this?
    . Results
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ There you will find much information that will

  • - Help you better utilize the Spine-Health system
    - Provide pointers on how to make your threads / posts
    - Tips on how to create your avatar (your picture), posting images, etc
    - General pieces of valuable information

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide

  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
    - Medical advice of any kind
    - Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : 11/23/15 08:47est

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