I've had two micrdiscectomies for herniated L5S1 disc. I had complications in both surgeries. I've had chronic pain for 3& half years. I also have another long term condition which exacerbates my back/nerve pain, a number of other smaller, but equally painful unrelated health conditions (e.g migraines) & like many people here, have struggled with side effects of meds which have caused further health problems (e.g. Stomach ulcer). I've been told numerous times that I'm "unlucky" that I've faced these various problems from a young age (I'm late 20s now). I hate this! I don't want to be labelled as "unlucky" because it removes all of my percieved control over my previous, current and possible future health problems. There is something wonderful about being "lucky" (I.e. I think of luck as something which you have had no control over, have put no more effort into fixing than another person, but by chance is a good thing which happens to you - bad luck means the opposite to me). I've also heard many times that my complex situation is very "unusual". This too upsets me, not so much that Im unique (as I like to see it) but because when it is said to me, it has some kind of negative connotation to it. This could be because I've had so little help from health care professionals to manage two different, but seemingly related conditions (I'm yet to find a doctor who has come across someone else who has had both conditions or has any idea how to manage these). For the first time recently, a health care professionals took positive interest in my unusual and unlucky situation and wanted to follow my progress closely (I was discharged from their care) to learn about how I get on. This approach helped me to see my unsual and bad luck in a different light.
How does it make you feel to be called unusual or unlucky? How could we help doctors to understand how to manage slightly different or seemingly inexplicable situations so they are not deemed poor luck?