Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Are you unlucky or unusual?

I've had two micrdiscectomies for herniated L5S1 disc. I had complications in both surgeries. I've had chronic pain for 3& half years. I also have another long term condition which exacerbates my back/nerve pain, a number of other smaller, but equally painful unrelated health conditions (e.g migraines) & like many people here, have struggled with side effects of meds which have caused further health problems (e.g. Stomach ulcer). I've been told numerous times that I'm "unlucky" that I've faced these various problems from a young age (I'm late 20s now). I hate this! I don't want to be labelled as "unlucky" because it removes all of my percieved control over my previous, current and possible future health problems. There is something wonderful about being "lucky" (I.e. I think of luck as something which you have had no control over, have put no more effort into fixing than another person, but by chance is a good thing which happens to you - bad luck means the opposite to me). I've also heard many times that my complex situation is very "unusual". This too upsets me, not so much that Im unique (as I like to see it) but because when it is said to me, it has some kind of negative connotation to it. This could be because I've had so little help from health care professionals to manage two different, but seemingly related conditions (I'm yet to find a doctor who has come across someone else who has had both conditions or has any idea how to manage these). For the first time recently, a health care professionals took positive interest in my unusual and unlucky situation and wanted to follow my progress closely (I was discharged from their care) to learn about how I get on. This approach helped me to see my unsual and bad luck in a different light.

How does it make you feel to be called unusual or unlucky? How could we help doctors to understand how to manage slightly different or seemingly inexplicable situations so they are not deemed poor luck?


  • SavageSavage United StatesPosts: 5,427
    edited 11/28/2015 - 4:14 AM
    ...actually, "This is so rare!" is what I've heard for years.
    And with many of the new discoveries they made with me while trying to treat me.

    Many a specialist have saved me unnecessary treatment and medications from my well intentioned, but unaware, primary.
    Primary at the time, as I'm now better understood with stable health care.

    The beginning of my vascular issues, I became a part of a six month study by Mayo Clinic.
    As part of such a study, I sign off that I realize even if they find effective medication, I will not be notified, nor benefit in any way from the study.

    I felt like I was doing a service for my family, nieces, nephews, etc...and those not yet born...in the hopes of, if these issues are with them, issues will be better recognized, understood and treated.

    Personally, I do not think any of my experiences are rare, just not yet commonly known.
    Hopefully, as I seek treatments, doctors will become more aware of conditions, esp. when they see patients who do not "present" in typical fashion....like their box of knowledge with expand somewhat.
    Esp. ER doctors as first responders.

    And they will share what they learn and so on.... :)

    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Lily2014LLily2014 Posts: 84
    edited 12/01/2015 - 4:44 AM
    Hi Savage,
    It is good to hear of other people who have these seemingly rare situations. I think it is so good for people to take part in research to help others. I've been looking for research which I can do, but so far I'm yet to find any which I can participate in as I'm usually excluded because of my numerous problems. It sounds like you've had better experiences than me in finding professionals to help you. Yes so true that these things are not rare, just not well understood. Nearly 15 years ago I was first diagnosed with a chronic health condition which doctors at the time said was extremely rare and something they hadn't come across before. Now, we've come so far in our understanding of this condition that we know it's really not that rare and so many younger people are receiving a diagnosis at a young age. This exprience has given me hope that there will be new things which can help with my back and chronic pain.
    How many other people have rare conditions which we don't yet know about?
  • MetalneckMetalneck Island of Misfit toysPosts: 1,364
    If I didn't have bad luck - I'd have no luck at all !!
    I am terminally unique-
    and have learned that if you expect the unexpected-
    you will get exactly what you expect.

    Spine-health Moderator
    Welcome to Spine-Health  Please read the linked guidelines!!

  • dilaurodilauro ConnecticutPosts: 9,856
    To me, having good Luck or bad Luck has nothing to do with our situations.

    Its more about circumstances or environment that generally brought us here. For many , it was trauma, an unfortunate accident, being in the wrong place at the wrong time. Or others it was their genetics that played a key role.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
Sign In or Register to comment.