Hello and Good Morning
I have been searching to learn more about a surgery I was recommended for and it brought me here.
My history is urgent discectomy L4L5 for cauda equina syndrome 2009, followed by fusion at same level 2010. The initial trauma to that area left me with right leg neuropathy, weakness and foot drop. Follow up imaging showed little bone growth but the fusion was considered stable at the time due to the hardware.
I was never able to return to work full time and am now disabled.
For quite some time, I have been having increasing left sciatic pain and a noticable lean to my right. Unfortunately, my pcp wasnt very proactive in going further than recommending pt, or talking to therapist (wtf?) This practice does not prescribe scheduled meds and kept directing me back to my original neurosurgeon, whom I did not feel comfortable returning to. No orders for imaging despite multiple falls, increasing pain. Basically, I felt as though I was stonewalled.
I was finally able to get into a new neurologist who completed an emg ("grossly abnormal") then a mri. He immediately reffered me to another neurosurgeon.
The area above my fusion has slipped with a 38 degree curvature with end plate erosion. The surgery recommended was a T11-S1 fusion with anterior and posterior approaches (about 2 to 3 days apart). I cant find anything on a surgery involving this degree.
I'm beyond scared as I am sure all of you know that the post op pain can be incredible. (I will note that my current activity tolerance is bare minimum at best. Pain has ruled every aspect of my life and has me essentially home/bed bound. One day up is usually followed by 2 days down so any improvement is better than the current situation)
I do have an appointment scheduled for another opinion.
Is there someone out there that has had this multi level 2 step process?
Thank you so much for any input.****************************************************************************************************** Welcome to Spine-Health
One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.
So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.
Here are some questions that you should answer:
- When did this first start?
. Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
. Which doctor did you start with? Ie Primary Care Physician
. Who are you currently seeing?
- What Conservative treatments have you had? Which ones?
. Physical Therapy
. Ultrasound / Tens unit
. Spinal Injections
. Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
. Summarize the results, please do not post all details, we cannot analyze them
. How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)
. Name of Medication
. How long have you been using this?
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?
Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.
Please take a look at our forum rules: Forum Rules
I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ
There you will find much information that will
- Help you better utilize the Spine-Health system
- Provide pointers on how to make your threads / posts
- Tips on how to create your avatar (your picture), posting images, etc
- General pieces of valuable information
Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide
- Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
- Medical advice of any kind
- Recommendations in terms of Medications, Treatments, Exercises, etc
What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.
It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have areI’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?
Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.Specific comments :Personal Opinion, not medical advice :
--- Ron DiLauro, Spine-Health System Moderator : 12/11/15 13:19 est