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Living with Scoliosis and Chronic Pain

MarissaMMarissa Posts: 6
edited 12/11/2015 - 7:20 AM in New Member Introductions
Hello everyone I am new to this site and looking forward to having some convos with people that actually understand me! I am a 21 year old female that has been suffering from chronic back pain for 5+ years (pain primarily due to scoliosis). I have an S curve degrees are 34 and 42. Surgery has been discussed and my wonderful doctor prefers we prolong it due to the limit of mobility I'll get after fusing to my pelvis. It would be cool to hear from someone thats been fused to S1 and hear how they are doing.

BUT I really just would like to talk with people that understand living with chronic pain. I work full time at an office and I am also a single mother of a 3 year old. It can be very, very hard and lonely at times when even your parents don't seem to grasp what you're going through. Some more info on my back.. I was braced when I was diagnoised with scoliosis (age 13), I did physical therapy and had very minimal pain and my curves were half the degree they are now. After puberty the pain was more noticable and its been a downhill struggle since age 16. I currently take oxycodone 3x a day, muscle relaxers as needed, I wear lidocaine patches daily, I get cortisone shots every 2 months and I wear a shoe lift in my left shoe to balance me out a bit. I do gentle stretches and yoga every night before bed and occasional TENS therapy and I have tried alot of natural remedies for pain.. Magnesium, fish oil, tumeric, willow bark...

Its a never ending battle of managing pain and it can get very depressing at times if I allow it. What works best for me on top of all the things listed above is keeping positive. A pep talk, inspirational quotes, good music, relaxing bubble baths, good smelling candles , snuggles with my daughter are some things that lift my spirit. We can't always control how we feel physically but we can control how we are feeling mentally and spirtually. Positive thoughts can go a long way and are super important for people that have daily struggles like all of us do. I know it can be tough to be joyful and grateful when the pain is really bad and we are really tired, Ive had my fair share of moments where I felt like a lousy mother, a crappy employee, a flaky friend but we must make the best of it, thats really all we can do! Pain is inevitable, suffering is a choice. Sending you all my positive energy and strength!

Welcome to Spine-Health

One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.

Here are some questions that you should answer:

  • - When did this first start?

    . Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)

  • . Which doctor did you start with? Ie Primary Care Physician
    . Who are you currently seeing?
- What Conservative treatments have you had? Which ones?

  • . Physical Therapy
    . Ultrasound / Tens unit
    . Spinal Injections
    . Acupuncture
    . Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)

  • . Summarize the results, please do not post all details, we cannot analyze them
    . How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)

  • . Name of Medication
    . How long have you been using this?
    . Results
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

Please take a look at our forum rules: Forum Rules

I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ There you will find much information that will

  • - Help you better utilize the Spine-Health system
    - Provide pointers on how to make your threads / posts
    - Tips on how to create your avatar (your picture), posting images, etc
    - General pieces of valuable information

Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide

  • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
    - Medical advice of any kind
    - Recommendations in terms of Medications, Treatments, Exercises, etc

What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

Specific comments :

Personal Opinion, not medical advice :

--- Ron DiLauro, Spine-Health System Moderator : 12/11/15 13:20est

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