I am hoping someone may be having the same or may be able to give advice based on experience or knowledge. I will try to keep it brief.
Very active in childhood was a gymnast & irish dancer so kept very fit. At about 18 went from training almost everyday to not alot and it gradually dwindled. Had first baby natural delivery but was given an epidural which didnt work had niggles for a couple of years but just put it down to Motherhood. A few years later got pregnant again. Pelvis failed at 16 weeks & was diagnosed with SPD which was so severe they decided it was to dangerous to deliver naturally so had a c-sec.
Lifting baby out of cot one day & was in agony. GP put me on diazepam etc for two weeks. Tried physio, not eating to try & lose weight, got so bad got sent to a&e and refered to spinal consultant. Several mri's, ct scans, epidural injections, discographys later & consultant decided that I needed a fusion....
Had fusion but came out with severe nerve pain, shooting down leg and leg would go dead without warning.... 3 months later consultant did a decompression....which didnt help. Everytime i saw consultant he would imply i was depressed or perhaps I had a low pain threshold ( I had three discographys with absolutely not pain meds and one had to be abandoned and started again. (Started to question if i was going mad)
So consultant refered me to pain specialist who is excellent and listens to what you have to say and she had tried many blocks etc now on third try of Radiofrequency lesioning & whilst there is a slight improvement on calf. Am having awful headaches, insomnia and pain in back is so bad.
I am so desperate at this stage I don't know where to turn. I got sacked I have to boys under 7, a supportive but exhausted family & friends who try to understand but I can see are tired of my illness also. I'm not mad I am experiencing some of the worst pain I have ever had and just can't see the light at the end of the tunnel. I have gone from SuperMum to SuperUseless in three years and sometimes feel everyone would be better off without me.
Is anyone else going through this or any idea what to try next etc. I would be so grateful for any help