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Wish I knew what I had

scottyboy8sscottyboy8 Posts: 16
edited 12/28/2015 - 6:54 PM in Arthritis, Osteoarthritis
Hi all, I am currently working with my Rheumatologist to determine what kind of arthritis I have. She said I 100% have spondyloarthritis, but we need to find out what kind so we can treat it best. We have done a lot of blood tests and I think she has all but ruled out RA. When I last seen her I told her my family has suffered from psoriasis and she said she is sure I have psoriatic arthritis, but when I went home I remembered it was eczema and messaged her and she said we will keep looking. If anyone could share their views on this it would be greatly appreciated.

- Pain started around 3 years ago. At this time I was stressed with university and was repressing rage. I also was very inactive and never exercised. I remember waking up and had a shooting pain in my left buttock that hurt whenever I moved/twisted/turned.

- I had a car accident where a car going approximately 60kph crashed into the back of me. I was flung from my seat and remember thinking my back must have took some damage. I had no pain then or for a period after that. However, maybe the pain started a few weeks after this accident. I am not sure if this is related due to having no pain for a period of time after the accident. I am not sure on the dates exactly as it is all a long time ago. It is only looking back I think “Oh that could be a factor”.

- I had psoriasis when I was 7 years old around my groin area which cleared with the use of cream. It was never an issue really. My family suffer from another skin condition (eczema) but don’t think that’s related to psoriasis.

- I have always had bad posture.

- I am 180cm and I’m currently 57kg. My muscle mass is very low.

- I always sit with my legs crossed, or at least rest my ankle on one of my legs in a figure 4 position.

- The pain lasted only in my left buttock for around 2.5 years but has now almost completely subsided, and the pain is now in my right buttock.

- I had an MRI which showed a perfect spine with absolutely no abnormalities.

- I had hip and SI joint MRI which showed inflammation and joint space narrowing in both of my SI joints. Diagnosed with Sacroiliitis.

- “Morning stiffness” subsides almost immediately as soon as I get up and walk to bathroom. But pain stays all day.

- I can walk but can’t run. Walking eases the pain but only until a certain extent. When I walk too much it makes the pain worse.

- I am currently waiting for my HLA-B27 test results.

If you take the time to read this and look at my symptoms and give me your opinion it would be great.



  • dilaurodilauro ConnecticutPosts: 9,837

    One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.

    So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.

    Here are some questions that you should answer:

    • - When did this first start?

      . Year, Your age, etc
    - Was it the result of an accident or trauma?
    - Are there others in your family with similar medication conditions?
    - What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)

    • . Which doctor did you start with? Ie Primary Care Physician
      . Who are you currently seeing?
    - What Conservative treatments have you had? Which ones?

    • . Physical Therapy
      . Ultrasound / Tens unit
      . Spinal Injections
      . Acupuncture
      . Massage Therapy
    - What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)

    • . Summarize the results, please do not post all details, we cannot analyze them
      . How many different tests have you had over the years? Similar results?
    - What medications are you currently using? (details, dosage, frequency, etc)

    • . Name of Medication
      . How long have you been using this?
      . Results
    - Has surgery been discussed as an option? (If so, what kind)
    - Is there any nerve pain/damage associated?
    - What is your doctor’s action plan for treating you?

    Providing answers to questions like this will give the member community here a better understanding
    of your situation and make it easier to respond.

    Please take a look at our forum rules: Forum Rules

    I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ There you will find much information that will

    • - Help you better utilize the Spine-Health system
      - Provide pointers on how to make your threads / posts
      - Tips on how to create your avatar (your picture), posting images, etc
      - General pieces of valuable information

    Please remember that no one at Spine-Health is a formally trained medical professional.
    Everything that is posted here is based on personal experiences and perhaps additional research.
    As such, no member is permitted to provide

    • - Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
      - Medical advice of any kind
      - Recommendations in terms of Medications, Treatments, Exercises, etc

    What could be good for someone could spell disaster for another.
    You should also consult your doctor to better understand your condition and the do’s and don’t’s.

    It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are

    I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

    Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

    Specific comments :

    Personal Opinion, not medical advice :

    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • blossom77bblossom77 EnglandPosts: 50
    it can take some time for diagnosis, it seems your dr is trying to rule out certain diseases and this will help them diagnose you. It's scary waiting I know, I hope you find out more really soon.
    take care
  • itsautonomicitsautonomic LouisianaPosts: 1,804
    I can say that whiplash can cause issues far exceeding what one might believe and never rule out what it may have done even if it's only for a moment in time
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • SavageSavage United StatesPosts: 5,427
    Hello scottyboy......
    You mentioned working with your doctor to discover what kind of arthritis you have.
    You may be interested in information from one of our sister-sites... www.arthritis-health.com/forum .....
    as it may be a helpful resource to you.
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Your symptoms sound similar in the mornings. This morning was the worse ever. I didn't  think I would make it to the bathroom. As I push through the morning and the stiffness goes away pain is still there. Looking into Tumeric. I have always been very active. 
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