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Double fusion l5-4 scheduled and so unsure. Guidance pls!

VeroVVero Posts: 3
edited 12/31/2015 - 8:57 PM in Back Surgery and Neck Surgery
Hi everyone. I had a surgery for herniated disc in 2012, and again for re hernia toon in 2015. Got worse after the second one, with my pain level being at 8-9/10 at night time and whenever I lie down on bed/sofa. My mornings and nights are excruciating. I also have (apparently) fibromyalgia and arthritis for sure. Had several unrelated surgeries between 2012 and now. I also have a young daughter with chronic daily migraines who needs my care, help and love a lot due to her terrible pains. She also may need a big surgery for this, and this is so co flirting with my own health as I want the best for my child first, but also can't really cope with my own pain much longer. This said to show you a bit of background and describe my struggle. I have a double level fusio. Surgery scheduled for in two weeks and cannot decide what to do, due to all the above mixed together. The recovery will be very long and where I live, I would have to travel/fly abroad for my daughter's medical care, and this won't be possible for who knows how long after my surgery, if I go ahead, so she will basically be stuck suffering until her mother is ok to travel and care for her own post op. I had facet joints injections early December and just attempted a PRP Regenexxx treatment two weeks ago. So far, none of one two painful attempts did me any good. I am asking you all for your advice, one way or the other, own stories, positive or not, thoughts on maybe another treatmEnt for this extreme night pain, post op experience on travelling (would just be me and my daughter, no one else to help), etc. Could a nerve simulator work on my case? I am really feeling more down than ever as mine and my baby girl's conditions have been ongoing for many years and it is the case of one sick person caring for s other sick person. Not an ideal combo. As a mom, my child is mt everything. Doctors do t help, hey do t have time, and frankly, they don't really care and never seem to see the bigger picture. Thank you and sorry for the long post. Hope to read you soon and wishing you all a healthy New Year 2016.
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  • LizLiz Posts: 7,910
    Please take the time to read this post and refer to it when you have questions

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    dilauro

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    Liz -Spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • hvillshhvills Suzhou, ChinaPosts: 802
    When I read your story the safety warning they give on all commercial flights comes to mind, "...put on your oxygen mask first and then attend your child". If you don't get your health in order... you very well might not be able to help your daughter even if you wanted to. Your daughter helping you with your post op recovery should be a wonderful bonding/maturing experience and may even help with her health situation.
    Harry - 63 year old male...
    PLIF L4-L5-S1 due to disc degeneration... May 23, 2013
    PLIF L5-S1 due to failed fusion and broken screw... Jan 19, 2015
    Microdiscectomy, decompression L3-L4 due to herniated disc... Jan 19, 2015
  • Should always get at least two opinions, preferably more before undergoing surgery.
    Surgery is not a fix for pain, but instead is meant to fix anatomical problems. Recovery from fusion can take up to two years, although the first 6 months are the roughest for most people.
    Have you considered trying gabapentin or Lyrica to treat the nerve pain? Cymbalta, or amiltryptaline are others also used for that pain.
    There is also a procedure called radio frequency ablation that might offer some relief.
    The thing you need to remember with neuropathic pain medications, especially the first two, is that there are usually several dosage adjustments that need to be made to find the right dose for treating your nerve pain.


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