well 3 year anniversary coming up April 1st since c3-c4 fusion. Some background first, All started with the pain in the backs of the legs and took 7 weeks before Cigna approved a request for an MRI. The neurologist called immediately after he got the results and said i needed immediate surgery since my spinal cord was being crushed and was at a point where there was no fluid around the pointy of injury. . Next day
after the operation the neurosurgeon came in and had me walk. had a very difficult time but he said there were so many bone spurs in that area that the damage had been going on for decades and it would take time to repair itself. a year after, no improvement. Saw a second neurosurgeon in Connecticut and he said the wouldn't have done anything different based on what he saw in the MRI.
moved to georgia and my first stop was  Hospital. the orthopedic surgeon there also said the MRI looked good and the fusion had taken with no visible issues. His comment was 75% of the people with this type of injury get better, 20% stay the same and 5% of the people get worse. Naturally i fell into the 5% category. Started seeing 2 more orthopedic surgeons in Macon who both commented on the severity of the injury when they saw the MRI. Neither had any solutions to the pain except more pills Kept complaining of the on going arm pain but seemed to go over their heads and figured it was nerve related. Further complaining led to an EMG test and they foung i had Ulnar nerve entrapment. By weeks end, the last wo fingers n the left had had already hooked. Another operation but the damage was done. Now i have no usein those two fingers and the tips of the others have constant pins and needles.
My primary care Dir sent me to a pain management Dr who insisted on a brain MRI and said i had the symptoms of MS. I said  but had it done any way, no MS. Next was another EMG test on the legs, this time when i went, from my knee down, both legs were swollen to the size of my upper leg. The neurologist pushed his finger down on both legs, stared at them for a few minutes and said its not fluid but had no other explanation of what caused it. They now swell at least once a month. Circulation test showed no issues. EMG test showed no issues. all my blood work came back good also.
Primary care dr tried a number of different pills for the leg pain, finally prescribed valium. Took half a pill when i got them and within 45 minuted the pain from the knee down stopped so i now regularly take a half in the morning and half at night. they work well but now i get sever pain in the ankles and have difficulty trying to walk first thing in the morning. I have to stand for at least a minute before i can take a step.
Also, recently going down two steps, when i put my left leg down it gave out and down i went. Had to crawl to my car which was only few feet away and pull myself up as i don't have enough strength i my legs to get up without the aid of using my arms.
By the way saw, another neurosurgeon who looked at my latest MRI of the neck and he said the white spots on the spinal cord at c3-c4 is probably scar tissue which is causing all my problems. Still have the back pain and had several sets of injections which didn't do much to help.
So after three years and $4000.00 out of pocket each year, still no relief so my new years resolution is just live with it. Five intelligent, well trained specialists can't undo what was done so i'll keep my money and wait to see what the consequences bring. I'm healthy on paper for all the tests that were done but i'm suffering on the inside from all the pain.
Called Cigna about long term disability since i pay for it but they told me to go to social security. Went there and they said no, LTD should come from Cigna. Seems no one cares
Anyone have this many issues and any recommendations?  any good?
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Liz, Spine-health Moderator