I'm Sara. I've been lingering for a while, and now finally posting out of frustration and sadness.
I used to be a very fit, active, and outdoorsy person. I was hiking, kayaking, backpacking, doing advanced yoga for years, biking, etc. Over the past year, I've gotten to the point I don't do any of those things and hardly feel motivated to leave the house. Worst of it is I have a two year old that I can't be the mom I want to be to. I have pain that keeps progressing with no answers
I started to get deep hip pain in 2011, which I assumed was referred from a chronic left knee problem. I moved around/traveled a lot in that period, so as soon as I would get anywhere with a doctor, I'd be moving again. In 2012, the knee/hip pain became more consistent and intense. I saw an ortho who ordered another left knee MRI and a hip x-ray.
X-ray was fine. Mri revealed some knee issues, so arthroscopy was scheduled. Found out I was pregnant day of surgery, so cancelled. Hip/pelvic pain got much worse in late pregnancy. Epidural wouldn't numb it, though my legs were totally numb.
Couple months after baby, I returned to reschedule knee surgery. Told ortho about hip/pelvic pain. He came back in and said, "it's not your knee, it's your hip!" Ordered hip mri. I was floored. Thought he was a maniac. Got a 2nd opinion. Same. Ordered hip mri. House sold quickly, so figured I'd just resume my TX in new town. Had norco to manage pain for interim.
Sometimes the hip/pelvic pain was horrible. Felt deep pain throughout, tender points on hip and pelvis, and searing pain in hip and down front of thigh.
Last winter, felt an awful pain in left low back while getting out of the car. Figured it was a strain. Went on for a couple months. Finally saw new ortho. He wouldn't do hip mri. Thought low back pain causing everything. Did lumbar mri. Showed stenosis in L4/L5. Dx sciatica. Sent me for PT, gave me lyrica and norco. 6 months later, no improvement. Doctor not available, sent in sub. Sub said the stenosis wasn't significant enough to cause my pain. Ordered hip mri and sent me to neurosurgeon.
I just knew something would come up on mri. I was so relieved I would finally have an answer (the low back, pelvic, and hip pain are constant now, and I'm always tired).
Nothing on the mri but cysts around my ovaries on both sides, but "without concern." This doctor even said my lumbar spinAL stenosis wasn't even there, that it was a mistake by radiologist!
Sent me out with a recommendation to follow up with a gyno and my gp.
I also have a swollen lymph node that has been there for 6 months, but no one wants to investigate.
I'm devastated by this. I know the pain is very real. It has changed my life. I don't know what to do anymore. I have my pain meds thank god, and I don't know what I would do without them. Now I worry they will disco them since the diagnostics have been negative.
At a loss
Thanks for reading. Sorry so long.