I'm so glad this forum exists... I have never known anyone with scoliosis so this is awesome! I had surgery when I was 7 ... they put a pace maker of some kiND in my lower back that was hooked up to my spine and every night I turned it on with a magnet and it would zap my spine to try to lower the curve. Needless to say it didn't work . I don't think they do.that surgery anymore. .at 11 my curve was in the high 90s and I had the Herrington rods put in. I lived a very normal Pain free life... I've had 3 kids..no problems. This past year I started noticing stiffness in my lower back when getting up and just a little spot of pain. I decided to do some research this week just out of curiosity. I started reading posts from other ppl about this lower back pain starting around the 25 year mark of having the rods ...being in their late 30s /early 40s... some have degenerative disc disease. .. others flat back... others a fallen rod... curVing lower spine.. et c etc. ..I had just chalked it up.to my siatic nerve. Now I'm wondering? They were also talking about life expectancy. .. and how bc we shrink as we age ..the Herrington rods don't allow for that change and we have issues with our lungs and heart... I'm totally and completely shocked by this. I think most of us were told basically that life would go on... enjoy it... all is fine. I was told later that I may have issues with the lower back ...pain from wear and tear etc. I also read that doctors have realized that they were wrong about the curve stopping and that they've now discover that the lower back could end up curving!!
This is all new to me...anyone hear all this!!?