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6-months after 3-level (C3-C6) ACDF with instrumentation

Hi everyone. Sitting outside watching the flowers because it's one of those days when I just can't do much. My surgery was for spinal cord impingement due to severe spinal stenosis, of which I had no idea until the symptoms became unbearable (rubber legs, incontinence, numbness in arms & legs, soreness everywhere, extreme fatigue).

6 months out I wish I was "perfect" but I'm at a level of functioning I was at a couple years ago when I didn't know what was wrong & was diagnosed with fibromyalgia because no one even considered a spinal problem. So I accepted it until years later when it was apparent that something else was happening.

So, to keep my spirits up on "slow" days like today, I force myself to recall the progress made since surgery. When I first came home, I couldn't do anything by myself. I couldn't write, move my head, lift a thing, bend. Walking the dogs was NOT allowed. No leaving the house alone and certainly no driving. No going to bathroom alone, had to wear a "leash" to go up or down stairs, couldn't shower alone, no cooking, no taking even short walks. I needed a walker in the house. Then I graduated to a cane. And was released from in-home physical therapy to outpatient. Baby steps. And now I am independent again. I remind myself that healing & strengthening take time and I have no choice but to be patient.

I guess I balk at still needing help lifting things, reaching, having little energy, and I still look & feel a little drunk when I walk. Still have headaches, soreness & minor numbness but have slowly involved myself in activities I did before like counseling others, lunch with friends, participating socially when I feel like it. Neurosurgeon said Xrays look fine but ordered an MRI to make sure no nerves are still being compressed since I still have some nerve-related symptoms. This is scary. Cannot imagine needing another surgery, but I'd do it if it is the last move needed for me to feel and be "normal".
Psalm 91


  • [Deleted User][[Deleted User] Posts: 65
    edited 01/14/2016 - 9:51 AM
    The user and all related content has been deleted.
  • Ron1Ron1 CaliforniaPosts: 30
    bones have fused well. haven't used bone growth stimulator. what is it & why did you need it?

    yeah ha ha, triumph over wrapping a towel around the head. That's HUGE! Remember taking your first shower alone? My biggest mistake was probably doing more & more around here--dishes, a little laundry. Now the family thinks it's status quo, but it's not. However, it's my fault for not asking for help & trying to be farther along than I am. Seriously, after a few days of activity, I am unable to move much today. So I'm not going to and I'm going to be OK with it. In fact, I think I'll go back to bed for awhile and it's 1pm!
    Psalm 91
  • The user and all related content has been deleted.
  • Lvn86LLvn86 Posts: 68
    edited 01/16/2016 - 2:52 PM
    Did either of you have tingling numbness or prickly burning feeling in your backs around your front still at 10 weeks? Maybe I am doing to much and bringing this on. I also had sever cord compression and have a bad gait. It seemed I was a lot better when I first came home from surgery, maybe because I was on steroids for 4 days after surgery. I also was diagnosed with fibromyalgia when I knew something else was wrong. My knees are killing me which is arthritis. Even my inner thighs feel like they have a prickly feeling. I don't know I am scared I am regressing. I do have a bulge at c5/c6 but surgeon said not bad enough to operate on, I hope it isn't worse. Also have a herniation atT12-L1 that is suppose to be fine. This is such a crap shoot.
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