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Is this fibromyalgia?

LenoraSsLLenoraSs Posts: 1
edited 01/16/2016 - 9:02 PM in Fibromyalgia
Hello everyone, I'm a 27 year old woman and have been noticing odd symptoms over the last 7 or 8 months that i just kind of let go and didn't dwell on them. Now Im experiencing some symptoms a bit more severe which lead me to this forum. My memory is absolutely horrible and has been getting worse. I have been having very bad panic attacks and mood swings the last 2 months. Depression and have been under extreme amounts of stress. I broke out in a rash and went to the doctor and she couldn't find the cause of it. I get dizzy a lot upon standing up. My blood pressure is sometimes low. My feet and hands go numb although that has subsided a bit. I'm always cold and wearing a sweater. Headaches that last a few days then go away. Just the last couple weeks I've started to have pain just on the left side of my body. Worst pain being left shoulder blade then moving around it. Left leg bone pain. As well as jaw pain on the left side. I feel shaky and get nauseas. I have mild night sweats not every night tho. I feel like I'm falling apart my mouty goes completely dry like th2 moisture was just sucked out of it. I'm not overly tired but lack the energy or motivation to take a shower or clean the house. I have good days and bad days. I don't know what's wrong with me. I just had blood ran because the doctor thought i had a thyroid problem but came back normal. I'm due for the doctor again this week and i plan on bringing this up. Can anyone maybe weigh in on this. Thank you all foe taking the time to read this.

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  • LizLiz Posts: 7,832
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    Liz, Spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Have a look on the net for poor mans tilt table test. Also look at POTS support group on facebook. You may find something of interest there. I am not a Dr but I do have experience of nursing two daughters who have POTS they have very low blood pressure, pass out on standing,loads of pain and their temperature is all over the place. Also look at my daughters blog themyastheniakid which tells her story of becoming ill 9 years ago. i hope this gives you a few pointers.
  • itsautonomicitsautonomic LouisianaPosts: 1,817
    edited 01/18/2016 - 5:06 AM
    Jill as a person who suffers autonomic dysfunction of a different type I was thinking the exact same thing.
    Fibromyalgia should and always should be a diagnosis of exclusion, if a dr immediately tells you it's fibromyalgia, run. It is notoriously overused by doctors a when they can't find problems, especially with autonomic issues or nervous system problems.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • Hi, yes I agree its got to being In my opinion, a don't know what it is so call it that diagnosis. Autonomic syndromes EDS and POTs are all very little known by the average G.P at least here in UK. One G.P told my daughter she couldn't possibly have it only old people had that! It sounds like LeonoraSs needs a lot more investigations. Have you noticed how often EDS and hypermobility have been brought up lately?
  • itsautonomicitsautonomic LouisianaPosts: 1,817
    I don't think a GP is the right person to diagnose much of anything outside the standard stuff. I would always have it verified by specialists, but the world we live in nurse practioners are telling people they have fibromyalgia and these people live with it without seeing specialist to verify. I love nurse practioners and my mom is a nurse, but with the sheer amount of possibilities out there no GP or NP is qualified to make that final ruling on neurological problems or hard to diagnose things . I say this with all due respect to the front line medical field. I would say it's absolutely staggering how little is known about autonomic problems by doctors in general. More and more large hospitals are starting to open up " autonomic centers" so I'm hopeful for the advances to come. I'm sorry your daughters deal with POTS, there is a meme on a site I'm on and it says "POTS , stealing the lives of children everywhere" and it's very true.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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