got the doctor to admit to me that i have Cauda Equina Syndrome. (Iatogenic means the doctor caused it as i didnt have it before the op)
The lack of toilet control is all down to the nerves being damaged - not inflammation he said when i was discharged.
He has no idea how long it will take for the nerves to heal or even if they ever will. I have a further set of tests at the continence clinic in 2 weeks which will show if there is any recovery happening. I may be able to get a further set of tests in before i see the surgeon again in September. This will mark 3 months since the op and next step will be decided upon then.
This explains why there is NO sensation during sex. Isnt it funny how if a woman starts talking about sex guys immediately get embarrased. Both my doctor and my partner cringed when i started explaining the problems in that area.AND I had warned my partner that i would be telling him!
The numbness in my leg could come back as i am having a lot of strange little tingling, cramp like sensations from my toes and foot which apparently are the nerves firing off randomly as they try to get back to life.
However i now have my next target set up - to get back to work. I am office based and live about a mile from work. I have a bus stop a few doors up that drops me off outside where i work so it couldnt be easier. Lets see what work say when i put it to them. It will be a couple of weeks before i can manage anything approaching full time.
The big problem is the toilet thing. I use a catheter 4 times a day and we have a large disabled toilet at work that is big enough to use. If I keep the poo thing at the slightly constipated side of normal i am unlikely to have any "accidents".
If anyone knows anything about CES - from experience or cant point me to a good source of information - i would be extremely grateful. I would like to know what i might expect or pointers on anything i need to look out for or do.
Thanks folks, sorry this is a long post