I got a final diagnosis yesterday after three months of moderate to severe pain in my hip. I have a benign tumor in my ileum call the fibrous dysplasia . That tumor calcified back in October, and caused hairline fractures in the bone. Right next to my SI joint. Some of the pain was from the fracturing, which has now healed. But, I am still in a pretty decent amount of pain. They say it is from osteoarthritis which was caused by injury of the fracturing by my S I joint.
At first my orthopedic oncologist was talking about doing an SI joint fusion surgery. But now that I've had an SI joint injection, and they've done a new MRI, she said that procedure is really a last resort. They want me to do eight weeks of PT and see how it goes . And everyone from my orthopedist to the oncology department to my acupuncturist is telling me that from here on out forever I will probably have some pain in my hip. I really am not happy about that idea.
So I am here looking for information and to hear others' experiences. I haven't found a single person who is had this kind of tumor that I have. Mostly I'm just hoping to either figure out a way to get rid of my pain, or be able to somehow change my lifestyle so that I don't put myself in pain all the time. I have a very demanding job… 50 to 60 hours a week normally, and I just can't do it anymore. Not sure what I am going to do.
Fibrous dysplasia tumor left iliac bone
S I joint osteoarthritis