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About to lose my job

klc2831kklc2831 Posts: 7
edited 01/26/2016 - 10:05 PM in Neck Pain: Cervical
Hello. New poster here but wanted to tell you my story. I got hit from behind in a car accident in late September she was going about 45mph at the time. I didn't notice any pain or anything right away but in late October and November I was having back and neck/head pain. So far I've had in the month of Dec and Jan:
Brain MRI clear
Spinal tap for meningitis and Lyme - clear
Speciality Lyme testing in a lab in California - clear
Thoracic And cervical MRI laying down - mild disc profusion c5-c6
Lumbar MRI laying down clear but really bad muscle spams
Lupus, mono - clear
Abdominal MRI clear
Chest X-rays 3 times clear
Ultrasound on ovaries clear
Thyroid - clear

Here's the thing - my symptoms are fine when I am laying down! But when I get up its world war 3! I literally am about to drop to the floor as soon as I get up. It feels like my neck is breaking off my body, vertigo, neck gets insanely hot, can't barely swallowing, ears ringing. I've lost 20 pounds cause I can't hardly eat. I could totally go to work and live life with just pain but the neurological symptoms I can't deal with, I get shaky and tingly I sat to lose my balance and fall. My neck hurts in the C3-C6 region the most and I'm having awful lumbar nerve pain.

I'm 23 and an accountant played sports all my life (softball) never had one problem before.

My doctor refuses to write an order for a upright MRI (even though that's when I have the pain)

I'm in Virginia - Am I crazy for about to drive a state over to Tennessee and pay for one myself? I am done playing around. I've had over 50 tubes of blood drawn in 2 months. I have 14 weeks before my FMLA runs out (just got the papers today) I am bed ridden and just want my life back. I have good credit so I can put the test on my credit card and pay over time.

I have tried everything- I have tried Percocet with flexirol, Advil, aleve, Ibprofen, heating pad, cool pack, Epson salt baths, massage. I have tried every single thing.

I really need your guys advice.



  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    Liz, Spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • dilaurodilauro ConnecticutPosts: 9,859
    on an upright MRI? Are you thinking that because you have pain when you stand, that the upright MRI unit is going to detect something more?

    I am sure your doctor knows what type of MRI is best to diagnose your problem.

    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • dilauro said:
    on an upright MRI? Are you thinking that because you have pain when you stand, that the upright MRI unit is going to detect something more?

    I am sure your doctor knows what type of MRI is best to diagnose your problem.

    Well the problem is my doctor didn't know they existed and didn't know there was one just an hour and a half away.
  • itsautonomicitsautonomic LouisianaPosts: 1,807
    So I have a different thought process than many here, I do not believe in coincidences when health is involved. You had an accident then developed all these issues, and in my honest opinion with the testing panel it seems like your dr has no clue as to why you are suffering. That is the standard check the box down the line neurological symptoms testing stuff ( other than the specialist Lyme testing in California) when they have no idea, () which is necessary at times..... but with recent injury then all this beginning I would myself be questioning if necessary in my case. But that being said it has eliminated many things.
    If neurological issues are what is destroying quality of life I hope you are consulting with a neurologist ?
    I was where you are right now with my thoracic injury and i went to my GP and they prescribed an MRI , that is all you need, and I took that script to upright MRI place and had it done. It showed few minor new things recumbent ( laying down) did not and missed a few things the recumbent had shown. All in all it didn't do much but ease my mind as my pain increased upon standing. I paid out of pocket for it and don't regret it one bit it was my money and to eliminate something I felt was worth it.
    Now the downside , an upright MRI has its place and has some good success stories yet it's magnetic strength and quality of images does not rival a recumbent. That is just a fact at this time.
    If your job is on the line you must do anything and everything in your power, respectfully, to find answers. No doctor is going to pay your bills for you when you lose your job. That's a hard stance but one necessary .
    The best thing is that Your doctor seems to believe you with testing done that something neurological or other issue could be happening which is great, they are trying, but maybe this doctor has reached their limit capacity to diagnose wise. What has this dr lined up as the next step? If there was not one that may have added to the urgency you express.
    Good luck and the answer always comes out in the end, it's just making it to the end to find out.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • MetalneckMetalneck Island of Misfit toysPosts: 1,364
    If its auto related .... shouldn't your or the hitters insurance being picking up the tab(s) for all this??


    Spine-health Moderator
    Welcome to Spine-Health  Please read the linked guidelines!!

  • I got in to see a physicians assistant at a spine office and said she didn't have a problem ordering a cervical upright MRI. She said she is gonna call the orthopedic center that's an hour and a half away and get it scheduled.

    Metal neck- after I have a confirmed diagnosis I can open a claim with geico (her ins) and State Farm (mine)
  • itsautonomicitsautonomic LouisianaPosts: 1,807
    I hope you have a lawyer now guiding you?
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • nutcase007nnutcase007 United StatesPosts: 131
    Another test I'd suggest you research is a SPECT Bone Scan. I know this test was used for years to detect / monitor cancers, but I know multiple neurosurgeons who state that SPECT Bone Scans give them more information most times than MRIs. SPECT Bone Scans do a lot better job showing soft tissue inflammation than MRIs.
  • klc2831kklc2831 Posts: 7
    edited 02/04/2016 - 5:24 AM
    Thanks. Here is a picture (hopefully it works) of my cervical when I'm laying down. Had this on Monday of theis week. The outline in red is just me trying to show friends where I have been hurting. image

    I have my upright MRI on Sat Feb 13

    To keep all responses together here is the link to klc2831's other thread


    Liz, Spine-health Moderator
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