I had spinal fusion surgery to correct scoliosis when I was 14. For years, I was fine until two years ago. I started to feel pain in my back, especially the middle and lower parts of my back. This would occur when I stood for an extended period of time (usually around 20 minutes, but sometimes it takes even less time for the pain in my back to start). The pain is not sharp - rather a constant, chronic pain that is all over my back and leaves me feeling tired and fatigued. Because of the pain, I have trouble doing everyday activities that require me to stand for long periods of time, such as standing by a scanner or standing on a bus when there are no seats available. There are even some days when I cannot get out of bed or off my couch because of the pain in my back.
I've been to multiple doctors in DC and in Austin to try and find out what's wrong. These doctors have said that the hardware in my back is fine, but cannot pinpoint a specific cause for my chronic back pain and a treatment option to stop the pain that doesn't require drugs, which I am trying to avoid so that I don't become addicted or affect other parts of my body. I suspect that the pain might be a muscle or nerve problem. I do have Turner's Syndrome and one symptom of Turner's Syndrome that I have is low muscle tone. However, I'm not exactly sure if the low muscle tone would have anything to do with the chronic back pain that I suffer everyday.
Has anyone ever had chronic back pain years after having scoliosis surgery? Are there any doctors in the Houston area (I've decided to go to Houston since I've heard Houston has world-class doctors) who are experienced with scoliosis and chronic back pain? I am helpless right now and am tired of this chronic back pain affecting my life. Any advice, information, suggestions on doctors, etc. would be greatly appreciated. Thank you.
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Liz, Spine-health Moderator