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Multi- Level: Long Fusion Surgery

LauritaLLaurita Posts: 16
edited 01/27/2016 - 8:53 PM in Scoliosis
I am fused from T3-sacrum. Is there someone out there who had a long fusion? I would like to hear about your outcome. First PLIF surgery done in May 2011 was unsuccessful due to failed fusion. First revision PLIF done in 2014, then a week later an ALIF.
I am now 1 yr 5 mo post -op revisions. My left leg above knee has been in pain since the ALIF. Pain between shoulder blades, in the glutes, and in lumbar is terrible - also pulling sensation, whatever muscles I have back there shake and spasm, poor balance, no stamina - I force myself to do my daily chores always through pain. I do the walking (slowly...) but I feel as if I'm being pulled backwards. Stretching often increases pain.

If you are out there, please speak to me.

Laurita in Pain


  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    Liz, Spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • You sound like how I was the first few years! IT does get better. The balance worries me though. Are you having any cervical issues?? I am fused from T8-S1 and am getting fused C3-C7 in 3 weeks. And had the revision post and anterior as well in the lumbar from a false fusion as well. And I promise you it does get better. Your body has been thru the ringer and is still healing. So sorry you are going thru this though. Its never fun. Good luck with everything.
  • Hi Anna,
    I try to protect my cervical spine when I can, since I'm fused from T down. So far no problems up there. I wish you the best of luck on your upcoming procedure. 
  • Finally someone like me. I've had 3 surgeries for my scoliosis. T3-L3 (13 vert fusion) with a laminectomy & discectomy. Weather changes about kill me. Can't take narcotics cause I'm allergic. All I can take is Valium or Tylenol. Spasms just like you most  days. Every once in a while I'll have a good day but generally I feel so achy like after a gym workout. My abdomen feels sore. Ribs hurt all the time and my sternum hurts a lot. Nerve pain so bad most of the time I feel like I made a mistake having the surgeries. You're not alone.....oh and my first surgery was in 2004 and my last one was 8mo ago in June. 
    12 vertabrae fusion 2004 w/ rods for scoliosis. July 30, 2015 Discectomy & Laminectomy w/ mesh built disc & spacer, fusion one level down, new rods & new screws. Allergic to opioids. No medication except Valium & Tylenol.
  • esteveneesteven WashingtonPosts: 9
    Laurita, I hope by now you are doing better. I have been looking on this site for several days for a thread of those of us with long fusions. I had an xlif followed by a T10-pelvis fusion 5 weeks ago. It was 20 hours of surgery in 48 hours. I have no idea what to expect in the days going forward. My surgery was for adult (post-menopausal) scoliosis and I had about a 70 degree curve. My surgeon re-positioned my spine at ground zero, but I am not able to walk without a walker as my muscles are not used to the new position. That is discouraging. I am hoping to connect with someone who had to learn to walk again and others who have had fusions similar to my ten level fusion.
    I am often uncomfortable, but not in a great deal of pain. I have lots of pain relievers, but am currently just using Lyrica and Tylenol, avoiding the oxicodone if  possible because it makes my head fuzzy. 
    I would love to hear the progress of someone who has lived through this. 
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