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Chronic pain is just getting so bad

rtconant1rrtconant1 Posts: 348
edited 02/02/2016 - 7:23 PM in Chronic Pain
I was on here regularly a few months ago with updates on my issues. I had acdf on C5/C6 in Sept 2014. I suffered with neck pain and headaches for years before my surgery before I got doctors to finally listen and take a look and by the time they did, they had to do surgery and the damage was irreversible. I now have permanent damage to my spinal cord and my nerves in my neck along with entrapped nerves in my elbows. I still have bulging discs in my neck above and below the fusion. I suffer from daily migraines that I thought were getting under control somewhat after an IV infusion in December. I was also recently diagnosed with reynauds phenomenon that is getting worse all the time. I take so many medications( gabapentin, nortriptaline, zonisamide, ) a day to deal with this all and the all over pain is getting worse. I hardly sleep at night because of the pain. I was on cyclobenzaprine 3x day as well until a couple months ago when the nurse at work issued me a warning about me being on it while working after an incident at work when a overhead door malfunctioned and it came down and hit me on the head. I weaned myself off of it because I was told I could get fired if I was drug tested and found that I was taking it at work. Mind you all, I don't operate any PIV or machines. I got a minor concussion from it according to my neurologist. Because of financial reasons, I had to cut down on my doctor visits at the end of the year because they didn't want to see me unless I could pay my bill first. Nice, right? With the wide spread pain, I don't even know who to call, my PCP, my Neurologist, the physiologist. What they are going to even do about it. I don't even know if there is anything I can do about it. The pain is the worst in the evening, during the night and morning. Its bad enough that I don't feel like eating. I just need to relate to someone else going through this.
Tracie C


  • LauritaLLaurita Posts: 16
    edited 02/03/2016 - 12:05 PM
    I feel your situation; I have moderate to severe chronic pain for 6 yrs after failed fusion and now 2 massive revision surgeries.
    No help from doctors for the muscle/nerve pain; acupuncture did nothing. So I have discovered a few ways to escape temporarily from my pain and I do them every day. I lie flat and do deep breathing, and I use a fantastic infra-red heating pad
    in a chair with total spine support. I follow a rigid schedule in spite of being home all the time; I take a nap every afternoon which is somewhat rejuvenating. Please know you are not alone and thanks for sharing your story.
  • Thank you for your response Laurita. I haven't quite found what works to help with my pain yet. Some things help for a while and then they don't and then I am stuck trying to find another way. My job feels like it is killing me some days. I feel I cant focus and physically its making me hurt. I started using Essential oils to help with some of the muscle tightness pain which does help some and its natural.

    It does help that I am not alone. It can be very isolating with all of the pain.

    Tracie C
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