I am a 58 yr old grandma, currently living in Kentucky.
I was diagnosed with Ideopathic Scoliosis at age 14. I was x-rayed by an orthropedic (sp) surgeon every 3-6 months until my "S" curve stableized at age 17. I can't remember what the degree was then. I was thinking it was something like 39 Thoracic (sp) and 20something lumbar.
For 25+ years my curve(s) remained stable. I would get severe pain in the right thorac (sp) area when I did certain kinds of work or under certain kinds of stress. However, I looked "normal" in my clothes and it was not severe enough to feel self concious in a swimming suit.
Now that I am "post-menopausal" my curve has been progressing again. I definately do not look "normal" in normal clothes. People definately notice my deformity when I wear a swimsuit! I have seen several orthopedic spine specialists. All of them say my curve is not severe, I am not a candidate for surgery and that "scoliosis does not hurt"! One guy says my Thor. curve is now 49 degrees and another one says 61. The lumbar (compensitory) curve is about 10-15 degrees less.
I have had a series of bone density tests which show "osteopenia". And I have lost 1 and 3/4 inches in hight.
I have injured myself a couple of times in the last few years lifting or bending. In my younger days I was strong as a stevedore and never hurt my back doing those type activities. I assume that I pulled muscles or soft tissue since x-rays showed nothing but my curve.
The medical doctors prescribed celebrex since I am getting some arthritis. Can't take it because it agrivates my mild asthma. I have done physical therapy which helped for a while. I even obtained a "tens" unit for electrical stimulation. That helps a bunch but I have trouble putting the electrodes on myself.
About a year and a half ago I started seeing a chiropractor for the first time in my life. I finally found someone who would listen to my symptoms and explained my x-rays. Since I have gotten older, my discs have started wearing out, the bottom part of my worst curve is now twisting, and my cervical area is not curved front to back like it should be.
After a year and a half of chiro treatment, I have been able to maintain some flexibility. Before that I was stiff and "stove up". I couldn't raise my right arm to reach anything over my head. I couldn't turn my neck to look behind me when backing the car and I couldn't reach or twist to the side. I can do those things now.
Recently, I started neuromuscular massage. After the second treatment I could start taking a deep breath for the first time in years. The treatment is painfull and I am terribly sore for a few days but they tell me it will get easier as time goes by.
I have experienced pain level up around 8 or 9 before and I do not want to go there again. I have found that if I take action before my pain level gets to 5 it is much easier to bring down than letting it go past 5 or 6. I can live with level 3 or 4 so I hope to prevent it from ever going up high again.
I have had problems finding any information online about "adolescent scoliosis" that resumes progression after menopause. Am I the only one?
Thanks for listening,