great

what link?? someone erase it?

i would like to read what you are talking about but there is nothing there to read. maybe you could repost it, i hope you do. thanks alot.

I have informed the originator that messages to the general member community like what was posted should never be done.
Anytime there is an alleged government request for all patients, that type of news must be reviewed by the Spine-Health owners. This site is not in a position to distribute information like this. That is between the government and individuals.

Those people who call you and tell you they are from the SSA, then ask you to give them information?

I would never voluntarily give my information to the government... Mainly because the gov'ment already has everything they ever need to know about me. They have ways, you know...

Sounds phishy to me.

I have come across this inquiry online and it has to do with the DEA wanting to do away with some Schedule II medication they think is too addictive. They want to present testimony from chronic pain patients on long term narcotics to Congress in order to stop this legislation banning certain medications. I assume that Oxycontin would be at the top. There are organizations that are testifying against this, and they want to read patient accounts of daily living with severe pain, and show how they need narcotics in order to function.

people would leave oxycontin alone !!for the like of people like me and plenty more its a life line .if the idiot's want to snort it or inject it .that's there problem .but for genuine pain patients its a valuable weapon in the fight against intractable pain .
STRAKER

that is beacuse people are dr shopping or buying the oxy off the streets and the first thing they do is smoke it or crush it and snort or inject it i dont understand why someone would do that obviously they are not in pain they just want to get fu bared

{FU%*#@ UP BEOND ALL RECOGNITION NOW THIS TALK ABOUT MICHAEL jACKSON IS GOING TO CAUSE PROPLEMS

WE NEED THESE MEDS I WISH MY PAIN DR. WOULD FIX MY PAIN BUT WITH INSURANCE AND THINGS IT DRAGS ON I ASKED TO HAVE A MEDTRONICS INPLANTED BACK IN JAN. I AM JUST NOW GETTING THE TRIAL FOR THE MEDTRONICE ON 07/09/2009 SO 7 MONTHS WE NEED THESE PILLS TO GET THROUGH DAY TO DAY LIFE IT STILL HURTS BUT FROM A SCALE OF 1 TO 10 WITH THE OXYCONTIN IT IS LIKE A 1 THIS MEDICATION IS A GOD SEND EVERYTIME SOMEONE BREAKS THE LAW THE FDA STARTS TAKINH A LOOK AT EVERYTHING

Having seen some people post their letters to the FDA on other forums (as an "I'm so mad! Read what I wrote to tell them off!" kind of post), my wish is that some people would just hush up because their letters are not helping the cause.

Since I suspect many more of us will be writing to our representatives and directly to the FDA about proposed regulatory changes, it seems worth posting on the topic of clear, concise, and effective communication with the people involved in these decision-making processes.

For the sake of all pain patients, please:

1) Stay on topic and be specific. If you're writing about the proposed changes to regulating ~insert drug name here~ then only include information pertinent to that subject. Unless you want your letter to land in the big round file, don't trail off into a general rant about the unfairness of all things related to pain management.

2) Keep it short. Do not lay out a 40-page diatribe, describing in detail the hellish path you've traveled, firing one doctor after another, until you found the doctor that prescribes narcotics. Nobody's going to read a manifesto and if they do, they're going to classify you as either one of the drug seekers they're trying to root out or as a run of the mill whack job.

3) Use proper grammar, spelling, punctuation, and paragraph breaks. Ne1 w/ q's abt y?

The quality of the letters is just as important as the quantity, possibly more so in the case of pain patients because we need to come across as people who are well informed about our own medication issues -- not as a bunch of narcotic seeking, pill popping, drug fiends who are so high we can't generate a coherent thought and then put it in writing.