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Depression and Coping
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dilauro's picture
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Can you deal with it? Can I? Can We?

I try to read as many posts as I can. Many times, its the subject line that draws my attention.

Over the past several years, and even beyond that, I think one of the major areas of discussion is HOW we deal with all of this.

There really isn't one easy answer, but since I've posted words like this over and over, I wanted to do it here.

Facts
1 We have medical conditions that have saddled us with pain. For some of us, it may be only a few months , for others its been decades and longer.
2 Pain medications alone have not taken care of our pain levels and we are always looking for something else.
3 We get so frustrated and depressed because we see how we are today and can only imagine what our future will be like.
4 We can not do the things we did before all of this happened.
5 People do not understand my situation. Friends I had before begin to shy away. Our family members may also question our pain and what we have to go through every day
6 We have problems with our current doctor(s). They dont understand our situation, they say they can't do anything for us, they dont prescribe more pain medications, etc

Myths
1 This is the way we are going to be for the rest of our lives
2 My life as I have known it is over
3 There is nothing the medical field can do for me
4 No body cares
5 I am basically useless
6 I could end it all and it wouldn't make a difference

Fears
1 Stop thinking that there is a magic pill that will fix all of this.
2 It is not the fault of others, doctors, surgeons, etc that I am in the pain I am today.
3 Doctors dont care about me.
4 My family, my spouse will give up on me
5 I will never be the same


- We can control our situation, we can manage our pain, we can learn to deal with our pain.


- We NEED to stop focusing in on what we can no longer do, instead we need to put our efforts into figuring out how much more we can do.


- We NEED to stay positive. If we give up, we might as well be sentencing ourselves for a life of misery.


- We NEED to be STRONG. So when those roller coaster rides are on the downside, we can handle it.


- We NEED to have FAITH. That means in whichever way that takes you. It could be in your spouse, your doctor, your therapist, your religion. Whatever is the driving force to keep you on top.


- We MUST NEVER NEVER GIVE UP. Sure, we have had some tough times and will probably have some tougher ones up ahead. But that can not allow ourselves to throw in the towel. No matter what we are faced with deal with it and make the best of it.



There is a simple phrase that really says it all


MAKE LEMONADE OUT OF LEMONS

_____________

Ron DiLauro
Ron's Story
Suicide Hotline
Alcohol and Drug Abuse
Arthritis
_________________________________________
rdilauro@gmail.com
SH Administrators = dilauro or tamtam
SH Moderator Team =
haglandc , Numbskull , Liz, or Neck of Steel Cindy

"In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me."
"That there's none so blind as those who will not see."

The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules

User offline. Last seen 1 day 22 hours ago. Offline
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Thank you

I found this site just over a year ago and have ran through the gamit of emotions over and over. I dont post much but I do read alot and I want all of you to know that you help me alot. There is something comforting about knowing people understand what you are going through. Anyway I want to say Thank You to all here. Donna

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I liked that Ron I get to

I liked that Ron Smile

I get to wanting a pitty party every now and again but as bad off as I am I know other are much worse.

I feel like such a baby so I try to focus on things I can do (almost to excess). When I need a good cry I put in a sad movie and let it out then (weird I know).

DOING REALLY WELL- WHAT I CAN DO WELL -it makes up for what I can no longer do well or do at all and it makes me feel good about myself again.

KEEPING BUSY also helps me take my mind off of my pain or limitations. I have a hobby (in a club) and when I feel up to it I work on editing an instructive booklet I am writing for "new club members". I also started a few smaller projects that we needed and even though I don't have the physical strength like I used to I can still use my noggin and feel needed and appreciated.

Stay Positive My Friends!

Julie

_____________

I am not a doctor, my opinions are not meant to be medical advice. Just opinions from my personal experiences dealing with multiple spinal issues.

alexhurting's picture
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If life gives you lemons.

If life gives you lemons. Stick it in your corona botle, Its so much beter then lemonade,

_____________

L4 L5 disc replacement in 2004=causing nerve damage'Flexicore disc. 2006 fusion same level leaving adr in. Fusion did nothing to releive the nerve pain.Pain clinic=every injection procedure avalable inc,razadamy, ablation, nerve stimulater trial,morphine pump trial all failed. Pain can be described as burning pain in lower spine penetrating in to left buttock,down left leg. Refuse to take lyrica or nuorontin do to its side effect,Leaving me with norco,valume,and flexiril at night.Which these medications only help with the muscle aches and stiffnes does nothing for the nerve pain from the nerve damage sustained from the adr surgery.Coming up nov.19th 2009 Lami, and hardware removal from fusion,for hardware just causing more pain in other areas.Hardware block comfirmed hardware is also causing pain in diferent area aside from the severe nerve pain on left side.Emg showed some posible problem above surgery are at L3 L4.

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Thats good Ron! If this was

Thats good Ron! If this was facebook I'd "like" it!

_____________

24 years old. Started having neck and shoulder pain around age 18.

ACDF C4-C5 June 23rd, 2011.

User offline. Last seen 5 hours 6 min ago. Offline
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wow...

I joined yesterday, for this exact reason... The depression is the one thing I haven't really dealt with. I figured this post was made years ago, but so glad you posted it. It really hits home, specifically #3 on the Facts and #1 on the Myths. I definitely need more faith to deal with those.

_____________

MRI reports:
Bilateral facet hypertrophy from L3 to S1. Broad-based left foraminal/posterolateral disc herniation L4-L5, with underlying focal annular tear abutting the existing left L4 nerve root. Bilateral facet hypertrophy, with resultant mild to moderate left neural foraminal narrowing (L4-L5). Small posterior central disc herniation at L5-S1. Small right paracentral disc herniation at T7-8, indenting the right anterior thecal sac. 1.5cm rounded T2 hyperintense lesion in the T12 vertebral body.

Veteran of many RFAs (ask me anything about them). 50% disabled Army Veteran. Proud CPAP wearer (ask for advice).

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I agree, I think we should

I agree, I think we should try to make as much money as possible and try to start charaties that focus on the erradication of our respective illness/es.

Thats my plan at least, might as well try to find a cure for others.

User offline. Last seen 1 week 2 days ago. Offline
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Ron- You state it is a myth

Ron-

You state it is a myth to say this is how we are goign to be for the rest of our lives.

That may be true for some, but not for me. When I had my fusion surgeries, it sealed my fate as far as my back is concerned.

I am depressed both because I have unemployed for 3 years, and because when I look in the mirrow I see the me I used to be and I really, really miss that person!!

MsHumptyDumpty's picture
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julie - maybe I should not

julie - maybe I should not post this since Ron's post is what you are responding to.

However I will post about that from my own personal view Wink

My injury is the same as it was 1, 2 and now going on 9 yrs ago. Actually it is worse then when I was first injured.

BUT I am NOT the same. So Ron saying - this is not going to be how we are going to be for the rest of our lives - is true.

I am now able to dress myself, I can now tie my own shoes and shower alone. I can do a LOT more then I could even 3 months ago. No surgery (except I had my knees replaced last March). To look at me I seem the same. But to know me you can tell I am not, nor is my world/life. Smile

Once I came out of my depression I was willing to find ways to change my life for the better. Every "little" change I made THRILLED me.

I lost the company I had built & ran for 30 years. I had to give up my home as I could no longer function in it. I lived out on a farm and had to move into a town house in a large town. My marriage went down the tube and is still not great, as of my husband being so angry and not understanding of my limits.

Literally my whole life changed!!!!

When I joined this site I was in a deep depression and was thinking life was no longer worth living.
The members here supported me. They told me about new things to bring up to my Drs. They were my strength when I was weak. They would not let me fail at living.

Even had I not been able to improve with doing things for myself, I still am not the same INSIDE. So if you can't change your physical challenges, then try to take charge of your inner ones.

I hope you give us the same chance to help you learn how to live (really live) in your new normal world Big Hug

PS:sorry Ron for the thread high-jack Wink

_____________

Ms. Humpty Dumpty Took a great fall. L1-L2-L3-L4 - S1 & S2 full herniations. Spinal stenosis, spinal arthritis, DDD, scoliosis. Knees, hips & spine have degenerative bone disease, arthritis and bone spurs. Age 50 - Here to find & offer support. *Had bilateral knee replacement surgery done March 15th, 2011

dilauro's picture
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I will always appreciate any

response like you just made. MsHumptyDumpty, you completely understand the message I was making here and in so many of my other threads.

I know from reading so many of your posts, that even though you have your medical problems, you are not going to let them run your life. I applaud you for that.

Spinal problems are real. They do impact our lives.
But we have the choice to decide who is going to win.

The pain or You

Put me in a room with 1,000 people, and I know that the majority is going to say We(You) win and not allow the pain to take control.

It takes a strong individual to understand their situation and to make the most of it and still march on. Its always way too easy to throw your hands up and say, This is it, this is the rest of my life

_____________

Ron DiLauro
Ron's Story
Suicide Hotline
Alcohol and Drug Abuse
Arthritis
_________________________________________
rdilauro@gmail.com
SH Administrators = dilauro or tamtam
SH Moderator Team =
haglandc , Numbskull , Liz, or Neck of Steel Cindy

"In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me."
"That there's none so blind as those who will not see."

The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules

User offline. Last seen 1 week 2 days ago. Offline
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We NEED to stop focusing in

We NEED to stop focusing in on what we can no longer do, instead we need to put our efforts into figuring out how much more we can do.

Since nobody has a crystal ball, we cannot see into the future and attempt to figure out how much more we can do.

A crystal ball, however, would help us to see the future ramifications of the decisions we make about the treatments we seek for our back issues.

Since we can have no knowledge of what is down the road in our future, we are relegated to looking over our shoulders to see the person we used to be and the things we used to be able to do. In many cases, this involves lamenting and mourning what our back problems have taken from us. We should not avoid looking at the past since we can't see the future.

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there's a difference

Julie, I can (as I'm sure everyone else here can) really empathize with you and how you're feeling. I found this site not too long ago, and one of the first posts I saw was this one from Ron. I thought "wow! This is exactly what I was looking for" and have tried to really focus on the things I can do, the things that his post really points out. We may not have knowledge of the future, but we can take steps to guide it's path. You're not just relegated to looking over your shoulder. That's one big thing I got from his post, and I think you should try to see also. Take those lemons and try to squeeze out even a little bit of juice. Even if it's walking 1 block. Who knows, in 2 months you might be walking 1 mile! I tried to lose some weight starting about 3 months ago, just a little bit. I ended up losing 30+ and still going down. It's amazing how 1 little decision to do something small can snowball. Start with those little things, you're not going to be running a marathon tomorrow, but if you start by walking 1 block every evening.. you might run a marathon in a year or two. You have to start now though, stop lamenting over and mourning the past. Start with today, 1 or 2 steps, tomorrow 3 or 4. Next week a block, next year a mile, year after that a marathon.

We're all here. We'll support you. We'll cheer you on. We'll also understand and "feel your pain" on those bad days. But we each have to make our own decision to squeeze the lemons, I hope you decide to do that.

_____________

MRI reports:
Bilateral facet hypertrophy from L3 to S1. Broad-based left foraminal/posterolateral disc herniation L4-L5, with underlying focal annular tear abutting the existing left L4 nerve root. Bilateral facet hypertrophy, with resultant mild to moderate left neural foraminal narrowing (L4-L5). Small posterior central disc herniation at L5-S1. Small right paracentral disc herniation at T7-8, indenting the right anterior thecal sac. 1.5cm rounded T2 hyperintense lesion in the T12 vertebral body.

Veteran of many RFAs (ask me anything about them). 50% disabled Army Veteran. Proud CPAP wearer (ask for advice).

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I think adjusting might come

I think adjusting might come more easily when you have diagnosis, treatment plan, meds, etc. During the diagnosis phase it is very hard to move forward cause you are just waiting on answers and a treatment plan. I dont mean you cannot keep exercising and reasearching, but the moving forward in life part seems a little tougher.

_____________

Herniated T6-7 impinging on cord. Annular tears in T5-6 and T7-8, DDD and smorls nodes throughout thoracic. Small herniation in C2-3 and buldge at L 4-5.

"A hundred years from now it will not matter what my bank account was, the sort of house I lived in, or the kind of car I drove . . . . but the world maybe different because I was important in the life of a child."

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sticky?

This should really be a sticky post. I find myself referring back to it often, as well as posting the link to it for new folks who inevitably ask, "is there hope?".

_____________

MRI reports:
Bilateral facet hypertrophy from L3 to S1. Broad-based left foraminal/posterolateral disc herniation L4-L5, with underlying focal annular tear abutting the existing left L4 nerve root. Bilateral facet hypertrophy, with resultant mild to moderate left neural foraminal narrowing (L4-L5). Small posterior central disc herniation at L5-S1. Small right paracentral disc herniation at T7-8, indenting the right anterior thecal sac. 1.5cm rounded T2 hyperintense lesion in the T12 vertebral body.

Veteran of many RFAs (ask me anything about them). 50% disabled Army Veteran. Proud CPAP wearer (ask for advice).

dilauro's picture
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Ok

It is now a sticky thread.
I am glad you have found it helpful

_____________

Ron DiLauro
Ron's Story
Suicide Hotline
Alcohol and Drug Abuse
Arthritis
_________________________________________
rdilauro@gmail.com
SH Administrators = dilauro or tamtam
SH Moderator Team =
haglandc , Numbskull , Liz, or Neck of Steel Cindy

"In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me."
"That there's none so blind as those who will not see."

The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules

User offline. Last seen 2 hours 54 min ago. Offline
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This post was very supportive

I am new here and it is amazing how as humans,how sensative we all are. It is true, must try to remain strong, and I admit right now I am going thru the hardest time in my life. This was very helpful.

Thank you!

_____________

Susie
acdf c4-c7 5/10
ddd L4-L5 10/08

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